WEBVTT

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(upbeat music)

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Welcome to Hadley Presents.

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I'm your host, Ricky Enger, inviting you to sit back,

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relax and enjoy a conversation with the experts.

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In this episode, we discuss finding

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and utilizing rehabilitation services after vision loss.

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Our experts are Kendra Farrow

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of Mississippi State University,

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interviewed by Hadley Learning Expert, Steve Kelly.

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Welcome to the show, both of you.

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How are you?

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Hey, Ricky, how are you?

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Hi.

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Wonderful Steve.

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Hey, Kendra.

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So good for you guys to be joining us.

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I know there's a lot to cover.

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We'll probably just barely scratch the surface,

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but there's gonna be a ton of wonderful information here.

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Let's start out by actually having you guys

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tell us a little about yourselves

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and kind of what you do.

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We'll start with you Kendra.

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So my name is Kendra Farrow.

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I work at the National Research

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and Training Center on Blindness and Low Vision,

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which is located at Mississippi State University.

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In our center, we have several grants.

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One is a research grant,

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and the other one

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is a technical assistance and training grant.

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I'm at work primarily

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with the technical assistance and training grant,

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and I also do a lot of information and referral

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for the questions that come in through our website,

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or people who call us, just wanting to know

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how they can connect with services.

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And one of the really neat things about what I do here

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is that I have a national perspective.

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Before I came to the NRTC,

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I worked for a nonprofit agency,

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and in that role I was

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a certified vision rehabilitation therapist.

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I went to people's homes

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and I showed them how

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they could maintain their independence

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after they lost vision.

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And so I have both the side

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of being out there doing the services,

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but now I am at the national level training the trainers

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and connecting people with those services

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throughout the country.

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And it's just a whole different side

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of the services that are available.

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Absolutely. That is awesome.

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How about you, Steve?

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First of all, I wanna welcome you to Hadley.

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Tell us a little about your background

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and kind of how you got here.

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Well, first of all, I am absolutely delighted

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to be one of the newest members of the Hadley team.

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Prior to coming to Hadley,

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I too worked at a nonprofit for approximately 12 years.

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I also have a certification as a VRT,

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and I've got two other certifications as well,

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a CRC rehab counselor

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and a CATIS certification,

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which is just a certification for assistive technology

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related to blindness and low vision.

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So I too have had a fair amount of experience

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working with people out in the field.

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And to be honest,

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I enjoy what I'm doing right now,

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which is kind of advocacy,

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I see, on a little bit larger level

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in creating lesson plans

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and learning objects for a larger number of people.

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Although I'm still getting emails and phone calls

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related to what we've been doing

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on the discussion groups, so that's great.

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Yes, absolutely.

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Well, I can't think of two people better qualified

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to discuss rehabilitation services

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and what do you do when you're experiencing

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vision loss and how do you go about

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finding out what's available to you,

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and how do you actually go about

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getting access to those services?

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And so with that, I'll turn it over to you Steve.

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I know you have lots of great questions.

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Thanks, Ricky. You know, Kendra,

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I think that this is probably

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a continuation of some of the conversations

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that you and I have had at conferences over the years,

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and I just feel like a microphone has been dropped down

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between one of those conversations.

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Every time we get together,

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we kind of kick this can around.

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And if you don't mind,

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the first thing that comes to my mind is

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how many times have you heard this

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in the past from a client?

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The doctor told me there's nothing more he or she could do.

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What does a person do

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when they hear that from the doctor

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related to diagnosis for their vision

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or for their vision loss?

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So it is absolutely devastating to hear that

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from your eye doctor.

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And a lot of times people shut down

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and they don't really hear too much that they say

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to them after that.

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And when they're speaking about what they can or can't do,

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they're talking about from the medical perspective.

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And there's so much more that can be done

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past the medical perspective.

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You know, we can look at the adaptive skills

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about changing up how you do things

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to make them still accessible to you.

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There are ways to do almost everything.

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We haven't quite figured out driving the car yet,

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you know that self-driving car is still coming,

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but you know, as far as accessing print,

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accessing your household devices,

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washer, dryer, thermostat,

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all those things around your house that are challenging,

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there's definitely ways to do it

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it's just a matter of figuring it out.

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And I think the thing that's most important

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for people to know is that there are ways to do it,

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and there are professionals out there

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who can help you to learn those skills

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that you need to remain independent.

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And there's even services

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that can help you keep a job.

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A lot of people don't realize that,

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and I have had many people call me and say,

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well, I just quit my job yesterday

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so now what can you do to help me?

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And that's so discouraging to me

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because we could have actually

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helped them potentially to keep that job.

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But I think it's really important for people

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to just realize there are ways

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to adapt almost any activity.

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So before giving up on something,

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before walking away from your golf clubs

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or your gardening equipment,

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or giving away your woodworking tools,

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check out first to find out whether there are ways

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to adapt the activity that you love to do.

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One of the most common things that I would hear

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is, oh, well, I stopped using the computer, the iPad,

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phone, you name it,

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because I couldn't see the screen anymore.

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I think one of the things that I realized

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after hearing that is that

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unless you have a family member

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or someone that you are close to, a neighbor,

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who has had a vision loss,

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who's gone through the process,

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you as someone who's probably had

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pretty good vision your whole life,

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if you're someone who has an acquired vision loss,

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you have no idea that that iPhone

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that you just purchased

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actually has accessibility built into it.

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You just have to know how to turn it on and learn it.

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You don't know that.

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So you just assume that the only way

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that that device is gonna be used

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or your computer is visually,

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you've never heard of a screen reader before.

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You've never heard of a screen magnifier.

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Where is that disconnect?

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I don't think that doctors...

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I agree with you.

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The doctor is not saying there's nothing more I can do

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because they feel that,

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I think what they're saying is that

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medically there is nothing more that can be done.

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In some cases with macular degeneration

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or diabetic retinopathy, you name the disease,

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they've kind of reached the end

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of the medical procedures that can be done.

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But why is there that disconnect?

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Like the clients are often left in this limbo of,

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what do I do next?

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So I think it's because the services

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are not traditionally provided within the medical system.

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So you break your leg and the cast comes off

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and they send you to a physical therapist.

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It's all within the medical model of services.

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But when you lose vision

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and you get kind of to the end

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of the medical treatment that can be done

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and yet your vision is still not 100%,

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the way you would like it to be

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to really function effectively with your vision.

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There's not a lot that can be done

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within the medical model.

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Now traditionally, the services provided

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are more under the social service model

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and not under the medical model.

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And I think that's where the disconnect comes in.

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So you go to the Vocational Rehabilitation Service Program,

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even if you don't necessarily want to be employed

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after losing vision, you still go there

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because that's the entry point

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to pretty much all the services that are there.

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Thanks for clarifying that

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because I think oftentimes people have no idea

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what we initially mean when we talk about

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the medical model versus the social services model.

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I'm not always sure that the doctor

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is aware sometimes of the social services model

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or offers it the same credibility as the medical model.

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Yeah, I think that that's probably true.

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And a lot of times when I've worked with people

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that their doctor didn't tell them,

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and they're kind of upset about that,

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that their doctor didn't tell them,

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I tell them, well, look what you've learned.

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Now go back and make sure you tell your doctor

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how important these services were and how you found them,

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because it's important for them to get that feedback

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and to know that there are services out there

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so they can hopefully remember

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and tell their next patients

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that are in a similar situation.

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The other thing is too that sometimes

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you visually can have a pretty good acuity,

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and yet you're still having functional difficulties.

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So you might be corrected

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with the treatments to say 20/40, 20/50,

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but you're still getting a lot of fatigue

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when you sit and read like a book.

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You know, you can't read for more than

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20 or 30 minutes at a time,

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but you love to read,

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you need the services,

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and sometimes the services drop you through the cracks

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because you might not be eligible

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for the services at that point,

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'cause you're just not quite at the level

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usually 20/70 is a level,

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but in some states you're not eligible for services

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unless you're legally blind,

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which is the level of 20/200 vision.

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And I know sometimes

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again, we kind of lose people

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when we start talking about the 20/70 versus the 20/100.

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And you know, the quote,

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normal acuity is generally corrected to 20/20.

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So anything higher than that,

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like 20/70 means that it's less than perfect acuity,

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20/100 is further away from perfect acuity

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and so on and so forth.

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I think you bring up a great point

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because I've heard this many, many times.

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Someone who has say a 20/70 acuity,

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which means functionally anyhow,

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that a person might be having trouble reading the newspaper,

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generally speaking that person

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doesn't consider themselves blind.

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And you know, many times the person who is, "legally blind"

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which is 20/200, that person has a lot of functional vision.

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And in fact, in many, many states,

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a person with 20/200 vision

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is able with training to drive a car,

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say with bioptics, that person

272
00:11:11.370 --> 00:11:14.640
may not consider themselves blind.

273
00:11:14.640 --> 00:11:18.000
I think a lot of times those folks are not gonna go out

274
00:11:18.000 --> 00:11:21.240
and seek the services of a blindness professional.

275
00:11:21.240 --> 00:11:23.610
Why would I do that? I'm not blind.

276
00:11:23.610 --> 00:11:27.270
And so how do you go about seeking out those

277
00:11:27.270 --> 00:11:30.600
services, whether you've entirely become legally blind

278
00:11:30.600 --> 00:11:33.510
or you're just having difficulty seeing some things

279
00:11:33.510 --> 00:11:36.510
and you're wondering like, what's out there for me?

280
00:11:36.510 --> 00:11:39.870
It seems like just this vast array of things

281
00:11:39.870 --> 00:11:42.330
that you would have to think about and know about.

282
00:11:42.330 --> 00:11:45.780
Is there a good place for somebody to start?

283
00:11:45.780 --> 00:11:49.530
So there's definitely stuff out there

284
00:11:49.530 --> 00:11:51.600
in at least every state,

285
00:11:51.600 --> 00:11:53.790
but depending on where you live

286
00:11:53.790 --> 00:11:55.500
it looks very different.

287
00:11:55.500 --> 00:11:58.170
So I'm gonna try to explain

288
00:11:58.170 --> 00:12:01.920
some places you can go to start searching.

289
00:12:01.920 --> 00:12:04.170
So one of the places you could go

290
00:12:04.170 --> 00:12:07.530
is the website that's hosted by my organization

291
00:12:07.530 --> 00:12:09.750
with our technical assistance center.

292
00:12:09.750 --> 00:12:14.750
And the website is O-I-B-T-A-C.org.

293
00:12:15.000 --> 00:12:17.190
And on that page you'll find something

294
00:12:17.190 --> 00:12:18.960
that says state contacts.

295
00:12:18.960 --> 00:12:22.530
And on there is just a name and a phone number

296
00:12:22.530 --> 00:12:26.250
and address for every single state and territory.

297
00:12:26.250 --> 00:12:28.470
And that is the contact person,

298
00:12:28.470 --> 00:12:33.470
the entry point to the state services in your region.

299
00:12:33.540 --> 00:12:37.560
The other place that has a real national list

300
00:12:37.560 --> 00:12:41.640
that you can search through is on the Vision Aware website.

301
00:12:41.640 --> 00:12:44.100
And it used to be at AFB,

302
00:12:44.100 --> 00:12:45.540
the American Foundation for the Blind,

303
00:12:45.540 --> 00:12:46.953
but it's now at the APH,

304
00:12:47.820 --> 00:12:50.490
American Printing House for the Blind website.

305
00:12:50.490 --> 00:12:52.590
And it's a directory of services.

306
00:12:52.590 --> 00:12:53.670
So you can go in there

307
00:12:53.670 --> 00:12:56.490
and you can search for like low vision services.

308
00:12:56.490 --> 00:12:58.890
You can search for libraries

309
00:12:58.890 --> 00:13:00.720
like the Talking Book Library.

310
00:13:00.720 --> 00:13:02.910
And I would suggest you just go in there

311
00:13:02.910 --> 00:13:05.430
and tell it to tell you about everything

312
00:13:05.430 --> 00:13:07.770
that's in your state and it'll just list out

313
00:13:07.770 --> 00:13:09.720
all the different things and then you can sort through

314
00:13:09.720 --> 00:13:13.200
and get an idea of everything that's available.

315
00:13:13.200 --> 00:13:15.240
So like things like talking books,

316
00:13:15.240 --> 00:13:17.910
even if you have 20/70 vision

317
00:13:17.910 --> 00:13:21.450
and you don't consider yourself necessarily blind,

318
00:13:21.450 --> 00:13:24.120
they do have large print books,

319
00:13:24.120 --> 00:13:25.260
they have the audio books,

320
00:13:25.260 --> 00:13:27.240
and you're eligible for all of that

321
00:13:27.240 --> 00:13:29.220
if you're having difficulty reading,

322
00:13:29.220 --> 00:13:31.050
you don't necessarily have to meet

323
00:13:31.050 --> 00:13:34.740
a certain acuity criteria to be there.

324
00:13:34.740 --> 00:13:37.560
It's just a matter of getting someone

325
00:13:37.560 --> 00:13:39.960
to help you fill out that application

326
00:13:39.960 --> 00:13:41.340
and your eye doctor can do it,

327
00:13:41.340 --> 00:13:44.940
or someone from a rehabilitation center can do it.

328
00:13:44.940 --> 00:13:47.970
So I like to tell people that blindness,

329
00:13:47.970 --> 00:13:50.670
vision impairment, whatever, it's a spectrum disorder.

330
00:13:50.670 --> 00:13:53.760
You know, you might be really high functioning visually,

331
00:13:53.760 --> 00:13:55.440
and yet if you're having difficulty

332
00:13:55.440 --> 00:13:57.720
you're on that spectrum of vision loss.

333
00:13:57.720 --> 00:13:59.010
So think of it that way.

334
00:13:59.010 --> 00:14:00.630
We know that there's people

335
00:14:00.630 --> 00:14:03.330
that are very high functioning visually still driving,

336
00:14:03.330 --> 00:14:05.100
and yet they need the talking book.

337
00:14:05.100 --> 00:14:07.110
I mean, it's a real disconnect,

338
00:14:07.110 --> 00:14:09.120
but that's just the most efficient

339
00:14:09.120 --> 00:14:11.670
and effective way for them to complete the task.

340
00:14:11.670 --> 00:14:15.300
It's not always a visual solution to what you wanna do

341
00:14:15.300 --> 00:14:16.320
even though we might call it

342
00:14:16.320 --> 00:14:19.020
low vision services in other places.

343
00:14:19.020 --> 00:14:21.390
Let me go back to the different professionals

344
00:14:21.390 --> 00:14:24.300
that you're gonna find within these agencies.

345
00:14:24.300 --> 00:14:26.100
And I'm just gonna go through the job titles

346
00:14:26.100 --> 00:14:27.840
and a little brief description

347
00:14:27.840 --> 00:14:29.370
about what they are real quick.

348
00:14:29.370 --> 00:14:31.770
There's the vision rehabilitation therapists,

349
00:14:31.770 --> 00:14:33.480
that's what Steve and I both are.

350
00:14:33.480 --> 00:14:36.120
And vision rehabilitation therapists

351
00:14:36.120 --> 00:14:39.510
help people with activities around their home.

352
00:14:39.510 --> 00:14:40.620
Pretty much anything,

353
00:14:40.620 --> 00:14:42.300
whether it's using a computer,

354
00:14:42.300 --> 00:14:45.180
using low vision devices to access printed material,

355
00:14:45.180 --> 00:14:47.070
cooking safely in the kitchen,

356
00:14:47.070 --> 00:14:50.190
accessing those appliances around the home

357
00:14:50.190 --> 00:14:52.410
that have the little dials and touch pads

358
00:14:52.410 --> 00:14:55.020
and the microwaves and everything

359
00:14:55.020 --> 00:14:57.690
that you have to operate with in your household.

360
00:14:57.690 --> 00:15:01.080
Then we have orientation and mobility specialists,

361
00:15:01.080 --> 00:15:03.390
and these individuals teach people

362
00:15:03.390 --> 00:15:05.970
to travel safely outside the home.

363
00:15:05.970 --> 00:15:09.120
So if you need to cross the street to get your mail,

364
00:15:09.120 --> 00:15:10.620
if you need to learn

365
00:15:10.620 --> 00:15:14.310
how to use the fixed route buses in your community

366
00:15:14.310 --> 00:15:17.850
to get around if you don't feel safe driving anymore,

367
00:15:17.850 --> 00:15:19.320
all of those kinds of things,

368
00:15:19.320 --> 00:15:21.030
they're gonna help you with.

369
00:15:21.030 --> 00:15:22.920
If you think you want a dog guide,

370
00:15:22.920 --> 00:15:25.170
they can help you learn how that process works

371
00:15:25.170 --> 00:15:27.060
and get you the training you need

372
00:15:27.060 --> 00:15:29.580
to be able to enter those programs.

373
00:15:29.580 --> 00:15:32.430
And then there's also low vision therapists.

374
00:15:32.430 --> 00:15:34.140
Not all agencies have these,

375
00:15:34.140 --> 00:15:38.280
but they are specific to the low vision devices

376
00:15:38.280 --> 00:15:40.470
and they work with individuals

377
00:15:40.470 --> 00:15:42.600
to adapt the environment

378
00:15:42.600 --> 00:15:44.880
and make sure that you know

379
00:15:44.880 --> 00:15:48.150
how to use those devices for magnification.

380
00:15:48.150 --> 00:15:50.190
And we also have...

381
00:15:50.190 --> 00:15:51.210
Steve is one of these,

382
00:15:51.210 --> 00:15:53.250
the computer access trainers,

383
00:15:53.250 --> 00:15:55.950
and they teach you specifically

384
00:15:55.950 --> 00:15:57.360
like the really detailed stuff

385
00:15:57.360 --> 00:16:02.360
when it comes to how to use an iPhone or a computer,

386
00:16:02.580 --> 00:16:05.250
because those get into a lot of details

387
00:16:05.250 --> 00:16:06.565
and there's different programs

388
00:16:06.565 --> 00:16:08.880
for doing different things

389
00:16:08.880 --> 00:16:10.980
depending on what device you wanna use.

390
00:16:10.980 --> 00:16:13.860
So those are all the traditional professionals

391
00:16:13.860 --> 00:16:17.040
that you're gonna find in these different agencies.

392
00:16:17.040 --> 00:16:20.070
Some of them have gone to a master's program

393
00:16:20.070 --> 00:16:21.600
and they're certified,

394
00:16:21.600 --> 00:16:23.190
and some of them are not.

395
00:16:23.190 --> 00:16:27.180
Some are simply hired by the organization, trained by them,

396
00:16:27.180 --> 00:16:30.630
and they're what we call agency trained professionals.

397
00:16:30.630 --> 00:16:33.510
So they know a lot of the information.

398
00:16:33.510 --> 00:16:36.000
Some of them are really good and very well trained,

399
00:16:36.000 --> 00:16:39.090
and other ones just isn't quite at the same level.

400
00:16:39.090 --> 00:16:43.200
So you're gonna find a real variety of knowledge

401
00:16:43.200 --> 00:16:47.280
with these professionals in the traditional list

402
00:16:47.280 --> 00:16:48.900
of professionals there.

403
00:16:48.900 --> 00:16:51.990
How would you tell the difference?

404
00:16:51.990 --> 00:16:55.980
And frankly, is it that important

405
00:16:55.980 --> 00:16:57.060
to know the difference?

406
00:16:57.060 --> 00:16:59.460
And if a follow up to that is,

407
00:16:59.460 --> 00:17:00.600
you know sometimes I think that

408
00:17:00.600 --> 00:17:02.370
one of the reasons that a doctor

409
00:17:02.370 --> 00:17:06.570
may or may not make a referral to the social services

410
00:17:06.570 --> 00:17:08.940
is I get the sense that sometimes

411
00:17:08.940 --> 00:17:13.940
a person may feel as though these are just volunteers

412
00:17:14.310 --> 00:17:18.030
or do-gooders, for lack of a better word,

413
00:17:18.030 --> 00:17:20.220
how do I know that this is actually

414
00:17:20.220 --> 00:17:22.200
a professional who's got a master's degree

415
00:17:22.200 --> 00:17:24.870
with a certification, a national certification?

416
00:17:24.870 --> 00:17:28.087
So they typically will have a C

417
00:17:28.087 --> 00:17:29.280
by their initials.

418
00:17:29.280 --> 00:17:31.890
So if it's a vision rehabilitation therapist,

419
00:17:31.890 --> 00:17:34.170
they go by the initials VRT

420
00:17:34.170 --> 00:17:38.220
and it will be a CVRT if they're certified.

421
00:17:38.220 --> 00:17:39.660
And if you're not sure,

422
00:17:39.660 --> 00:17:41.550
you know maybe you can't read their business card,

423
00:17:41.550 --> 00:17:43.680
you can ask them too about their background,

424
00:17:43.680 --> 00:17:45.927
how they learn to do what they're doing.

425
00:17:45.927 --> 00:17:48.540
And I'm sure that they'll be happy to share with you

426
00:17:48.540 --> 00:17:50.160
the training they've received

427
00:17:50.160 --> 00:17:51.750
to be able to do their job.

428
00:17:51.750 --> 00:17:54.330
I think maybe it's just important to let folks

429
00:17:54.330 --> 00:17:56.130
know that there is a national certification

430
00:17:56.130 --> 00:17:57.780
for a lot of these positions

431
00:17:57.780 --> 00:18:00.570
and people do achieve those certifications,

432
00:18:00.570 --> 00:18:03.120
and in other places perhaps they don't.

433
00:18:03.120 --> 00:18:06.030
And it maybe it's not necessary to have that certification,

434
00:18:06.030 --> 00:18:09.120
but it could be a good thing to ask or to know about it.

435
00:18:09.120 --> 00:18:12.030
It's just good to be aware

436
00:18:12.030 --> 00:18:14.910
that not every professional meets the same level.

437
00:18:14.910 --> 00:18:18.060
So if you are somebody who lives

438
00:18:18.060 --> 00:18:19.470
in one state part of the year,

439
00:18:19.470 --> 00:18:21.870
in another state, another part of the year,

440
00:18:21.870 --> 00:18:24.510
you might find that services look very different,

441
00:18:24.510 --> 00:18:27.810
and don't give up if you've had a bad experience one place

442
00:18:27.810 --> 00:18:30.030
and you happen to move to another location,

443
00:18:30.030 --> 00:18:31.230
you might have a completely

444
00:18:31.230 --> 00:18:33.630
different experience with services.

445
00:18:33.630 --> 00:18:37.230
How about the role of an occupational therapist,

446
00:18:37.230 --> 00:18:39.690
which is, that is in the medical model.

447
00:18:39.690 --> 00:18:40.890
How does that fit in?

448
00:18:40.890 --> 00:18:42.540
Because oftentimes I think people

449
00:18:42.540 --> 00:18:45.720
are going to encounter an OT

450
00:18:45.720 --> 00:18:49.830
in some of these agencies or low vision clinics.

451
00:18:49.830 --> 00:18:52.241
They have started fitting into the low vision

452
00:18:52.241 --> 00:18:56.040
picture since 2002 when Medicare and Medicaid

453
00:18:56.040 --> 00:18:59.100
allowed them to start billing for low vision services.

454
00:18:59.100 --> 00:19:01.740
Sometimes you'll even find OTs that are working

455
00:19:01.740 --> 00:19:03.090
with an eye doctor.

456
00:19:03.090 --> 00:19:06.240
Usually it's a low vision clinician.

457
00:19:06.240 --> 00:19:08.430
So a low vision clinician

458
00:19:08.430 --> 00:19:10.680
tends to be an optometrist

459
00:19:10.680 --> 00:19:12.810
that's had some extra coursework

460
00:19:12.810 --> 00:19:15.690
related to low vision devices.

461
00:19:15.690 --> 00:19:18.210
And if you have the opportunity

462
00:19:18.210 --> 00:19:19.800
to have a low vision evaluation,

463
00:19:19.800 --> 00:19:21.900
we really think that that's a great idea

464
00:19:21.900 --> 00:19:23.370
because what they're gonna do

465
00:19:23.370 --> 00:19:27.510
is way beyond your normal medical eye exam.

466
00:19:27.510 --> 00:19:30.450
It usually takes somewhere around an hour,

467
00:19:30.450 --> 00:19:33.450
maybe as much as two hours to meet with them.

468
00:19:33.450 --> 00:19:35.340
They don't dilate your eyes,

469
00:19:35.340 --> 00:19:37.440
they're gonna look in your eyes briefly

470
00:19:37.440 --> 00:19:40.860
and they're gonna do probably a more detailed acuity tests.

471
00:19:40.860 --> 00:19:42.900
So when you're looking at the eye chart,

472
00:19:42.900 --> 00:19:44.610
they're probably gonna have a different chart

473
00:19:44.610 --> 00:19:48.510
and get down to a more detailed level

474
00:19:48.510 --> 00:19:50.880
of what you actually see and don't see.

475
00:19:50.880 --> 00:19:53.970
And then they're gonna show you different magnification aids

476
00:19:53.970 --> 00:19:56.850
and oftentimes they sell the devices

477
00:19:56.850 --> 00:19:59.130
so there's a pretty big push

478
00:19:59.130 --> 00:20:01.740
to buy the items that you see

479
00:20:01.740 --> 00:20:04.680
that are demonstrated to you on that appointment.

480
00:20:04.680 --> 00:20:07.380
And they can be very helpful to you,

481
00:20:07.380 --> 00:20:10.260
but you need to be really careful

482
00:20:10.260 --> 00:20:11.880
about asking some questions.

483
00:20:11.880 --> 00:20:14.610
For instance, could I take this item home

484
00:20:14.610 --> 00:20:17.640
and try it out for a week before I commit to buying it?

485
00:20:17.640 --> 00:20:20.640
Often that's not an option, but sometimes it is.

486
00:20:20.640 --> 00:20:23.670
And it's hard to know how it fits into your environment

487
00:20:23.670 --> 00:20:26.310
when you're only seeing it in the doctor's office.

488
00:20:26.310 --> 00:20:27.720
Coming back to the OTs,

489
00:20:27.720 --> 00:20:30.270
the OTs will work with these low vision doctors

490
00:20:30.270 --> 00:20:33.240
to kind of follow up and help you learn more

491
00:20:33.240 --> 00:20:34.620
about how to use the device.

492
00:20:34.620 --> 00:20:36.450
So that's a pretty good model

493
00:20:36.450 --> 00:20:39.090
when you find both the OT

494
00:20:39.090 --> 00:20:41.220
and the low vision doctor working together,

495
00:20:41.220 --> 00:20:42.390
'cause you know you're gonna get

496
00:20:42.390 --> 00:20:45.330
a lot of training in that situation.

497
00:20:45.330 --> 00:20:48.990
If the low vision doctor is just by themselves,

498
00:20:48.990 --> 00:20:50.820
you are just gonna get that one appointment

499
00:20:50.820 --> 00:20:53.100
and you often don't get a lot of follow up then

500
00:20:53.100 --> 00:20:55.200
from that in your home.

501
00:20:55.200 --> 00:20:56.490
I think one of the things

502
00:20:56.490 --> 00:20:58.920
that has come up in our profession

503
00:20:58.920 --> 00:21:01.800
is you have a specialized professional

504
00:21:01.800 --> 00:21:05.520
called a Certified Vision Rehabilitation Therapist,

505
00:21:05.520 --> 00:21:10.410
and you also have an OT who may or may not have

506
00:21:10.410 --> 00:21:12.900
some specialty with the field.

507
00:21:12.900 --> 00:21:14.700
What is the difference between the two,

508
00:21:14.700 --> 00:21:17.070
can you just give me in general terms?

509
00:21:17.070 --> 00:21:19.965
As it plays out in vision rehabilitation

510
00:21:19.965 --> 00:21:24.030
services, the OT is focused on the person

511
00:21:24.030 --> 00:21:26.490
completing tasks in a visual way.

512
00:21:26.490 --> 00:21:28.740
So whether that's with a magnifier

513
00:21:28.740 --> 00:21:32.490
or electronic magnification or using contrast,

514
00:21:32.490 --> 00:21:36.240
everything is focused on the task using vision.

515
00:21:36.240 --> 00:21:39.210
Where the vision rehabilitation therapist is different

516
00:21:39.210 --> 00:21:41.880
is that they will look at the visual options,

517
00:21:41.880 --> 00:21:43.830
but they'll help you to decide

518
00:21:43.830 --> 00:21:46.890
is it better to use a visual way to complete this task

519
00:21:46.890 --> 00:21:48.660
or a non-visual way.

520
00:21:48.660 --> 00:21:52.800
So an example might be setting the knobs on your stove,

521
00:21:52.800 --> 00:21:53.790
you know how the knobs are

522
00:21:53.790 --> 00:21:56.580
at the back of the stove on most setups.

523
00:21:56.580 --> 00:22:00.300
And so to lean across the stove burners to use a magnifier

524
00:22:00.300 --> 00:22:03.870
to read those styles would be the visual way of doing it,

525
00:22:03.870 --> 00:22:06.150
and yet that's unsafe if the burners are on

526
00:22:06.150 --> 00:22:08.580
and you're trying to find the off position.

527
00:22:08.580 --> 00:22:11.910
So the most efficient and safe way to do it

528
00:22:11.910 --> 00:22:13.410
will probably be to reach over there

529
00:22:13.410 --> 00:22:15.900
and have a tactile mark that you find with your finger

530
00:22:15.900 --> 00:22:18.660
to verify that you're getting the button turned

531
00:22:18.660 --> 00:22:20.280
into the off position.

532
00:22:20.280 --> 00:22:22.290
That's the easiest way I can explain it.

533
00:22:22.290 --> 00:22:24.450
So you would just look at each task

534
00:22:24.450 --> 00:22:27.000
and then decide, is it better to do this

535
00:22:27.000 --> 00:22:28.980
in a visual or a non-visual way?

536
00:22:28.980 --> 00:22:30.600
And you would decide together,

537
00:22:30.600 --> 00:22:33.060
the professional and the client together.

538
00:22:33.060 --> 00:22:36.330
And sometimes the OT is gonna know those non-visual ways

539
00:22:36.330 --> 00:22:37.530
and suggest them, and especially

540
00:22:37.530 --> 00:22:39.330
if they're not safe like the stove.

541
00:22:39.330 --> 00:22:41.070
But yeah, they don't always go,

542
00:22:41.070 --> 00:22:43.470
that's not their first thought,

543
00:22:43.470 --> 00:22:45.570
their main focus is gonna be

544
00:22:45.570 --> 00:22:47.820
to use the vision to do the task.

545
00:22:47.820 --> 00:22:50.790
So this has all been incredible

546
00:22:50.790 --> 00:22:54.180
and probably literally life changing information

547
00:22:54.180 --> 00:22:57.720
for some people who are losing their vision.

548
00:22:57.720 --> 00:23:00.240
There's just a lot to take in here.

549
00:23:00.240 --> 00:23:04.260
So if each of you had to kind of distill this

550
00:23:04.260 --> 00:23:06.390
into a single piece of advice

551
00:23:06.390 --> 00:23:07.950
that you would give someone

552
00:23:07.950 --> 00:23:10.500
who's looking for rehabilitation services

553
00:23:10.500 --> 00:23:12.690
and they're experiencing vision loss,

554
00:23:12.690 --> 00:23:14.580
what would you say to that person?

555
00:23:14.580 --> 00:23:16.410
We'll start with you, Kendra.

556
00:23:16.410 --> 00:23:19.020
So I would say to not give up.

557
00:23:19.020 --> 00:23:21.600
To make sure that you look around

558
00:23:21.600 --> 00:23:22.950
and have people help you,

559
00:23:22.950 --> 00:23:26.250
search online if you can't do that anymore.

560
00:23:26.250 --> 00:23:30.000
Google things like low vision and the name of your town,

561
00:23:30.000 --> 00:23:33.570
or vision rehabilitation services,

562
00:23:33.570 --> 00:23:35.010
there's all kinds of things.

563
00:23:35.010 --> 00:23:36.690
You might even put the word blind in there

564
00:23:36.690 --> 00:23:38.820
just to make sure that you're not missing out

565
00:23:38.820 --> 00:23:41.520
on something that would be helpful to you.

566
00:23:41.520 --> 00:23:43.620
So really research it,

567
00:23:43.620 --> 00:23:45.690
ask your friends, ask your family,

568
00:23:45.690 --> 00:23:48.210
it's one of the best kept secrets out there.

569
00:23:48.210 --> 00:23:51.030
And one more thing I that we didn't talk about is,

570
00:23:51.030 --> 00:23:54.480
if you're a veteran, you definitely should ask

571
00:23:54.480 --> 00:23:56.610
about services at the VA,

572
00:23:56.610 --> 00:24:00.420
because they have awesome services for the veterans

573
00:24:00.420 --> 00:24:03.600
who have vision loss and you don't wanna miss out

574
00:24:03.600 --> 00:24:06.150
because they're really great services

575
00:24:06.150 --> 00:24:07.920
that are available through the VA.

576
00:24:07.920 --> 00:24:10.260
Fantastic. And how about you, Steve?

577
00:24:10.260 --> 00:24:13.290
Stay engaged and remember,

578
00:24:13.290 --> 00:24:15.060
the services you're looking for

579
00:24:15.060 --> 00:24:19.267
might be labeled blindness or low vision.

580
00:24:19.267 --> 00:24:23.610
I just wanna second also what Kendra said about the VA.

581
00:24:23.610 --> 00:24:26.280
The VA offers great services

582
00:24:26.280 --> 00:24:29.100
and you'll find a great number

583
00:24:29.100 --> 00:24:33.270
of vision rehab therapists through the VA.

584
00:24:33.270 --> 00:24:35.310
And one thing that we didn't touch on

585
00:24:35.310 --> 00:24:39.420
is that you'll find a great difference in the fee structure

586
00:24:39.420 --> 00:24:42.930
between social services and the medical model.

587
00:24:42.930 --> 00:24:45.300
Oftentimes with social services,

588
00:24:45.300 --> 00:24:47.760
there's no out of pocket fee

589
00:24:47.760 --> 00:24:51.570
or they're available on a sliding scale.

590
00:24:51.570 --> 00:24:53.520
Excellent. How about some quick

591
00:24:53.520 --> 00:24:55.650
contact information for both of you?

592
00:24:55.650 --> 00:24:58.080
If people either wanna visit a website

593
00:24:58.080 --> 00:25:01.320
or perhaps send an email to either of you to follow up,

594
00:25:01.320 --> 00:25:02.850
where's the best place they can go

595
00:25:02.850 --> 00:25:06.750
to see what you're up to or maybe contact you?

596
00:25:06.750 --> 00:25:11.287
So our main website is blind.msstate.edu,

597
00:25:13.770 --> 00:25:16.830
and we consider our three websites,

598
00:25:16.830 --> 00:25:20.940
which you can link to all of them through that main website.

599
00:25:20.940 --> 00:25:23.400
We consider them to be your source

600
00:25:23.400 --> 00:25:24.780
for blindness information.

601
00:25:24.780 --> 00:25:25.920
That's our new tagline.

602
00:25:25.920 --> 00:25:28.530
So please come check it out,

603
00:25:28.530 --> 00:25:31.140
look at our research projects

604
00:25:31.140 --> 00:25:33.930
and see the plain language summaries that we have.

605
00:25:33.930 --> 00:25:36.960
And we have continuing education courses

606
00:25:36.960 --> 00:25:39.030
mostly for professionals who are in the field,

607
00:25:39.030 --> 00:25:41.850
but anybody's welcome to take them, there's no cost.

608
00:25:41.850 --> 00:25:42.900
Steve, how about you,

609
00:25:42.900 --> 00:25:44.400
where can people find you?

610
00:25:44.400 --> 00:25:46.282
I think the easiest thing to do is just send me an

611
00:25:46.282 --> 00:25:50.010
email, it's stevenk@hadley.edu.

612
00:25:50.010 --> 00:25:52.890
Hadley's a great place to just get started,

613
00:25:52.890 --> 00:25:55.020
click on the discussion groups

614
00:25:55.020 --> 00:25:57.750
and just get involved.

615
00:25:57.750 --> 00:25:59.010
I wanna thank you both

616
00:25:59.010 --> 00:26:01.620
for sharing this information with all of us.

617
00:26:01.620 --> 00:26:03.300
It's incredibly important

618
00:26:03.300 --> 00:26:04.650
and you've done a great job

619
00:26:04.650 --> 00:26:07.200
of kind of making it informative and approachable,

620
00:26:07.200 --> 00:26:09.420
which is really, really important.

621
00:26:09.420 --> 00:26:11.610
Thank you again for joining us,

622
00:26:11.610 --> 00:26:13.380
and for those of you listening,

623
00:26:13.380 --> 00:26:15.900
you'll find all of the resources mentioned here

624
00:26:15.900 --> 00:26:17.790
over in our show notes.

625
00:26:17.790 --> 00:26:19.830
And we appreciate you listening.

626
00:26:19.830 --> 00:26:21.510
Got something to say,

627
00:26:21.510 --> 00:26:25.260
share your thoughts about this episode of Hadley Presents,

628
00:26:25.260 --> 00:26:28.080
or make suggestions for future episodes.

629
00:26:28.080 --> 00:26:29.820
We'd love to hear from you.

630
00:26:29.820 --> 00:26:34.260
Send us an email at podcast@hadley.edu.

631
00:26:34.260 --> 00:26:39.260
That's P-O-D-C-A-S-T@hadley.edu.

632
00:26:39.330 --> 00:26:40.890
Or leave us a message

633
00:26:40.890 --> 00:26:43.623
at 847-784-2870.

634
00:26:46.140 --> 00:26:47.891
Thanks for listening.

635
00:26:47.891 --> 00:26:50.558
(gentle music)