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(soft music)

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Welcome to "Hadley Presents."

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I'm your host, Ricky Enger,

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inviting you to sit back, relax,

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and enjoy a conversation with the experts.

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In this episode, we share tips

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for attending a house of worship with vision loss,

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and our guest is Pastor Scott Himel.

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Welcome to the show, Scott.

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Thank you so much Ricky for having me on

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Hadley Presents.

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It's a pleasure to be here with you.

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Well, we are delighted that you could join us.

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We choose these topics not just by sitting around

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and thinking about hmm, what should we talk about?

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But actually, by hearing from people,

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hearing from our listeners and what's important to them.

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And this topic is one that has come up quite a bit.

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So, I'm delighted that you could be here

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and just share some tips with us.

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Before we get into the practical aspects

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and some logistics to consider,

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why don't we start by just

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having you tell us a bit about yourself, who you are,

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what you do, what your background is, that kind of thing?

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Sure.

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So, I'm senior pastor

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of North Shore United Methodist Church located

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in Glencoe, Illinois, just north of Chicago.

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We're a welcoming, inclusive,

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and service-oriented congregation.

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If you're in the area, we'd love for you

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to visit us anytime.

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I also have low vision and it's a result of my albinism,

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which I've had since birth.

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And I think it's helpful just to offer some examples

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of what I do see and don't see.

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So, I'm right on the edge of legal blindness

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and I have good peripheral vision.

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I can see everything anyone else can see,

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but it's low resolution.

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I just went on a fishing trip, and I can see where to cast,

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see the fish, but the line and some of the finer details

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are really hard for me.

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I can play basketball,

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but shorter passes are better for me.

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A long pass I might miss the basketball.

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That just gives you a rough sense of what I see.

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My remarks today are going to emerge

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from my lived experience of a person with low vision,

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and I'm hoping that will help in particular,

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a person who also has low vision

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and how to remain active in the life of her

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or his faith community.

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Some of my tips may help someone with total blindness,

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some may not, and I'll try to bear that

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in mind as I'm speaking.

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But I think primarily, it will be for those with low vision.

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Perfect.

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Thank you for setting that expectation.

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That helps.

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So I know that even before we get into talking

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about the service itself and how to navigate that,

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one of the biggest problems that people tend

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to have is how do I even get there,

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especially if I don't know anyone yet

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and I'm looking for a new faith community to belong to?

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Maybe I've just moved or for any number

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of reasons people may find themselves

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in that situation where they're struggling

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to even get to a service.

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Are there ways that people can approach this

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and get that consistent transportation

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to just get there and get back home?

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Absolutely.

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There are several options for a person to consider

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and I'd just like to first mention

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that this is a tough issue,

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to have transportation struggles.

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I have a lot of empathy for it because I've gone through it,

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and I don't drive.

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There are days you just say, "Man, if I just had a car."

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But naming that and that emotional struggle,

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then I think as a person with any disability in life,

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it's necessary to say, "Okay, that's true.

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I don't have a car.

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And there are actually several options at my disposal

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that I have to consider

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in order to overcome this challenge that is in front of me."

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I think you'll see that as we just list these.

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So, the ideal is if you have a family member

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or someone who lives in your household

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who also belongs to the faith community

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and you can ride with her or him,

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but let's assume that's not the case

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and that's where I think it gets more complicated.

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So going in order of what I would just imagine

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at a broad level that would be easy

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and then getting to the more complicated,

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carpooling with another church member

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is another great option.

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And if you go down that route,

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I would consider lining up two or three people

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because somebody travels.

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If it's one person and they're gone,

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then your whole system doesn't work for that week,

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and it could be a really important Sunday

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that you want to be there, or they can get sick.

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So having a few people is like your bench.

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You've got your people you can call on.

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And if you need help figuring out

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who can be on your team to help you reach the church,

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talk to the church administrator.

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Your church admin knows everything.

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They know everyone and they know who lives near you,

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and that's really important.

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That will help you to not feel like the person

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is going way out of their way to pick you up.

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Some people, by the way,

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don't care if they have to go out of their way,

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especially if they know you and have a relationship,

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but even so, it helps you feel good

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if you know they're in your neighborhood

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and it's no big deal for them to pick you up.

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Larger churches may have a church van

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and that's a great option if that exists.

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Smaller churches probably don't have that available.

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If we've exhausted those options, and again,

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think of it like these are all options

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and so maybe something falls through

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and you have to go to a different option.

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Another can be public transit.

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I wouldn't discount that depending on where you live.

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And bear in mind that your city may offer discounted prices

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on annual public transit fares.

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So that's something just to remember.

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Your city or town may offer a special bus transit service

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for people with disabilities.

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You usually need to pre-schedule

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with them at least a day in advance.

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And with worship, you can even

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have a standing appointment with that bus

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to come get you, pick you up.

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The downside can be you're sharing it with others.

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So sometimes, there can be a bit of a wait.

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They don't always arrive right on the minute,

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but it's a legitimate option to consider.

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Again, exhausting those options,

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I think Uber and Lyft are something not to discount.

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They can be expensive,

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especially if you have a long distance to go.

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I usually tell people over 10 miles,

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Uber or Lyft gets more expensive,

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but it's a good backup option even

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if you do have to go a longer distance like that.

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If all else fails, don't forget

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that there's virtual worship,

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but I wouldn't rely on this every week.

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Virtual worship is great.

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It's a wonderful thing that's come out of the pandemic,

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but it isn't the same thing as physically

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being in the church, being able

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to build relationships with people.

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It's really best if you're traveling

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or can't make it for one particular Sunday

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to have that as a fallback option.

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Absolutely.

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And it's great to know that there are so many things

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to choose from because I think people feel like,

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"I have this single option. I've got this figured out.

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And if that doesn't work, well,

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I guess I feel powerless.

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There's nothing else I can do."

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So having things to choose from is again, so helpful.

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Absolutely.

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You're not powerless.

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That's a huge thing with any disability,

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or I like to say that you're differently abled.

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You're not disabled, you're differently abled.

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You're not powerless.

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You just have to go through life differently

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than some other people.

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Yeah. And thinking ahead of time

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and figuring out some of those things

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can make it so much easier to deal

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with when the thing pops up where you're like, "Uh-oh.

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My plan A fell through.

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Now what?"

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Yes, exactly.

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So, it's remarkable when we think

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about attending a service

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and just how much visual information there is.

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You may think of it as, "Well, we're here.

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We're talking.

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We're having a conversation.

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We're here to listen to a sermon."

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It's all centered around speech,

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but there's a lot going on visually.

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So, I don't know that we'll be able to cover everything,

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but let's talk about a couple of the things

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that do crop up from a visual perspective

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and then how you might navigate that.

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So, one of the first things I think about is the gestures

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or the things that we do.

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When is it time to stand?

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When is it time to kneel or again, perform a gesture?

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Everybody's looking to the worship leader

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for when to do that.

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But if you can't, how are you going to know

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when to do those things so that you're not a step behind?

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Most visual cues in the worship service

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have an audible accompanying queue such as,

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"Please be seated."

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If the clergy person waves to be seated,

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they usually say that too.

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If you need to come forward for communion,

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usually they'll say at the end of the communion litany,

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"Please come forward at this time for communion,"

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as they make a hand gesture.

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But for those cues that don't, and they certainly happen,

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listen and follow what others are doing.

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It sounds simple and it is simple.

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It's so simple you might not even think about that at times.

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And it's helpful to sit with a family member or a friend

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and tell them that you may need guidance,

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especially if it's your first time at a new faith community.

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That's challenging for anyone even if you do have vision.

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There's a lot of things you're figuring

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out how they operate.

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And you can even ask that person next to you,

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"Hey, could you whisper in my ear

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if it looks like I don't know?"

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Or if I tap you on the shoulder, and no one's going to know.

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They just lean over, no big deal.

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Let's say this is your home church

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where you're going there repeatedly

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and you're noticing that there are a lot of visual cues

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without an accompanying audible cue

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or you're just struggling in general.

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I think at that point,

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I would then have a conversation with the clergy

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about your needs and your experience

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and ask them to be more intentional

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about their audible cues and they'll be glad

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to do that for you.

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And they'll probably say, "Oh.

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We do that automatically.

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I just forgot that day and I should be doing that."

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Let's talk about communion

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because I think that's one where there

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can be more anxiety because there's movements that happen.

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And so that can be challenging, but it's easy to overcome.

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If intinction is how communion is being offered,

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meaning you're coming forward to receive

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from the clergy or attendant, the bread and the wine,

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follow the person in front of you

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because it's one row at a time,

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00:10:35.340 --> 00:10:37.560
people are exiting and going toward the front

259
00:10:37.560 --> 00:10:39.510
and then they return back to their pew.

260
00:10:39.510 --> 00:10:41.130
So, follow the leader.

261
00:10:41.130 --> 00:10:43.200
And then if you get there and you're having trouble,

262
00:10:43.200 --> 00:10:44.460
you're in front of the elements

263
00:10:44.460 --> 00:10:46.350
and you're having trouble seeing things,

264
00:10:46.350 --> 00:10:50.130
just whisper to those serving, "Could you help me?"

265
00:10:50.130 --> 00:10:51.480
And be patient.

266
00:10:51.480 --> 00:10:52.620
Don't rush.

267
00:10:52.620 --> 00:10:54.420
They're going to do a lot of it.

268
00:10:54.420 --> 00:10:56.610
So, open your hands and let them place the bread

269
00:10:56.610 --> 00:10:57.660
in your hands.

270
00:10:57.660 --> 00:10:59.220
And then usually, you dip that in the cup,

271
00:10:59.220 --> 00:11:00.960
so then just slowly dip it in the cup.

272
00:11:00.960 --> 00:11:02.700
If you have trouble seeing it, let them know

273
00:11:02.700 --> 00:11:03.780
and they'll guide you.

274
00:11:03.780 --> 00:11:06.060
If you're Catholic, you may drink from the cup and usually,

275
00:11:06.060 --> 00:11:08.700
the attendant will actually put the cup in your mouth.

276
00:11:08.700 --> 00:11:12.300
So just wait, and they'll do that automatically for anyone.

277
00:11:12.300 --> 00:11:14.910
And just go slow, tell them what you need

278
00:11:14.910 --> 00:11:18.180
and then follow the person who's returning to their seat.

279
00:11:18.180 --> 00:11:19.170
Follow them.

280
00:11:19.170 --> 00:11:21.240
If the person who is in front of you has already left

281
00:11:21.240 --> 00:11:23.400
and you don't know where to go, that can be tough.

282
00:11:23.400 --> 00:11:24.510
Just go slow.

283
00:11:24.510 --> 00:11:26.640
Try to remember generally where you were.

284
00:11:26.640 --> 00:11:28.260
And again, if you've told the people you're sitting

285
00:11:28.260 --> 00:11:29.760
with you may need help, they'll wave at you

286
00:11:29.760 --> 00:11:32.670
or they'll whisper to you and tell you where they are.

287
00:11:32.670 --> 00:11:36.300
So, you can be seated there next to them.

288
00:11:36.300 --> 00:11:37.133
Great tips.

289
00:11:37.133 --> 00:11:38.430
Thank you.

290
00:11:38.430 --> 00:11:43.430
What about not just the how to navigate

291
00:11:44.850 --> 00:11:48.450
in an unfamiliar place or figuring out when to stand up,

292
00:11:48.450 --> 00:11:50.130
sit down, all of that.

293
00:11:50.130 --> 00:11:54.150
There is so much printed material to think about.

294
00:11:54.150 --> 00:11:56.970
So, there's the hymnals during the service,

295
00:11:56.970 --> 00:11:59.190
the bulletins that come out,

296
00:11:59.190 --> 00:12:03.690
and even projectors now with slides

297
00:12:03.690 --> 00:12:06.570
and things to follow along with during the service.

298
00:12:06.570 --> 00:12:09.900
What are some ways that people can deal with that

299
00:12:09.900 --> 00:12:13.830
and get that information that's so essential

300
00:12:13.830 --> 00:12:16.530
in a way that's actually accessible to them?

301
00:12:16.530 --> 00:12:19.230
Sure. I think at a high level,

302
00:12:19.230 --> 00:12:21.540
it's important to think when you have low vision

303
00:12:21.540 --> 00:12:24.780
that I need to prep before I go somewhere.

304
00:12:24.780 --> 00:12:28.350
And the more components that need to be considered,

305
00:12:28.350 --> 00:12:29.940
the more you may need to prep.

306
00:12:29.940 --> 00:12:31.290
Then if it's a recurring thing,

307
00:12:31.290 --> 00:12:32.850
it gets easier to prep because you know

308
00:12:32.850 --> 00:12:34.290
what you need over time.

309
00:12:34.290 --> 00:12:36.600
So, think about what you usually need a few days

310
00:12:36.600 --> 00:12:38.130
before something like a worship service,

311
00:12:38.130 --> 00:12:39.990
especially if it's your first time going there.

312
00:12:39.990 --> 00:12:41.700
Make a list of what you need.

313
00:12:41.700 --> 00:12:44.370
I like to say that any person with low vision needs

314
00:12:44.370 --> 00:12:46.603
to have a low vision toolkit.

315
00:12:46.603 --> 00:12:49.500
Maybe it's even something like it's your set of tools,

316
00:12:49.500 --> 00:12:51.870
your things you generally take with you somewhere.

317
00:12:51.870 --> 00:12:54.450
You can always edit the toolkit as you need to.

318
00:12:54.450 --> 00:12:57.360
And maybe it's even physical objects you keep in a bag

319
00:12:57.360 --> 00:12:59.730
and it's a literal bag you take with you somewhere.

320
00:12:59.730 --> 00:13:01.440
It may even be helpful to put a reminder

321
00:13:01.440 --> 00:13:03.480
in your phone like on a Friday morning

322
00:13:03.480 --> 00:13:05.640
to prep for Sunday worship.

323
00:13:05.640 --> 00:13:07.440
And we'll get into some of the specific things now

324
00:13:07.440 --> 00:13:09.090
of what you need to prep.

325
00:13:09.090 --> 00:13:11.730
So, let's think about first, the bulletin.

326
00:13:11.730 --> 00:13:14.640
And I suggest talking with the church administrator

327
00:13:14.640 --> 00:13:18.810
to see if he or she can send you a word version

328
00:13:18.810 --> 00:13:22.320
of the bulletin or liturgy prior to Sunday.

329
00:13:22.320 --> 00:13:24.330
Usually, a church has that completed

330
00:13:24.330 --> 00:13:27.390
by Thursday afternoon a lot of times, or Friday morning.

331
00:13:27.390 --> 00:13:29.280
So, there is a time of the week

332
00:13:29.280 --> 00:13:30.300
when they'll have that for you.

333
00:13:30.300 --> 00:13:32.070
They're probably not going to have it on Monday.

334
00:13:32.070 --> 00:13:34.170
A PDF can work, but a Word document

335
00:13:34.170 --> 00:13:38.310
is ideal because you're probably, in the worship service,

336
00:13:38.310 --> 00:13:41.940
going to be viewing that Word document

337
00:13:41.940 --> 00:13:43.830
on a tablet of some kind.

338
00:13:43.830 --> 00:13:45.742
I would say it's better than a phone.

339
00:13:45.742 --> 00:13:47.910
With a tablet you can enlarge things much bigger

340
00:13:47.910 --> 00:13:49.050
than you can with a phone,

341
00:13:49.050 --> 00:13:51.420
although a phone can work depending on your vision.

342
00:13:51.420 --> 00:13:53.820
But the Word mobile app is really good

343
00:13:53.820 --> 00:13:57.570
because it has something called scaling in its mobile view.

344
00:13:57.570 --> 00:13:59.730
You can either view a document in Word in print view

345
00:13:59.730 --> 00:14:00.563
or mobile view.

346
00:14:00.563 --> 00:14:01.980
It's a button you hit.

347
00:14:01.980 --> 00:14:02.940
And in mobile view,

348
00:14:02.940 --> 00:14:06.600
you can scale a Word document really big.

349
00:14:06.600 --> 00:14:07.830
And what's nice about scaling

350
00:14:07.830 --> 00:14:10.290
is that it formats it where everything fits on the screen.

351
00:14:10.290 --> 00:14:12.630
You don't have to go back and forth on every line,

352
00:14:12.630 --> 00:14:14.700
makes it much easier to view.

353
00:14:14.700 --> 00:14:16.920
And the Word app on iOS and Android

354
00:14:16.920 --> 00:14:18.660
is free for viewing documents.

355
00:14:18.660 --> 00:14:21.510
So, you can pay for it if you want to edit them,

356
00:14:21.510 --> 00:14:24.330
and Hadley is glad to help you to learn how

357
00:14:24.330 --> 00:14:27.240
to do this if you're unfamiliar with anything.

358
00:14:27.240 --> 00:14:29.340
But let's say you don't have your tablet.

359
00:14:29.340 --> 00:14:31.440
You don't have a digital version of the bulletin.

360
00:14:31.440 --> 00:14:33.000
All is not lost.

361
00:14:33.000 --> 00:14:35.280
With a printed bulletin, there are solutions.

362
00:14:35.280 --> 00:14:38.700
That's where you want to have a digital magnifier ready.

363
00:14:38.700 --> 00:14:42.750
The iPhone or Android magnifier is fantastic,

364
00:14:42.750 --> 00:14:44.580
and it's replaced the need

365
00:14:44.580 --> 00:14:47.760
to carry a physical digital magnifier with me.

366
00:14:47.760 --> 00:14:51.030
But there can be benefits to a physical digital magnifier.

367
00:14:51.030 --> 00:14:54.090
These are a device that all it does, it has a camera,

368
00:14:54.090 --> 00:14:55.860
and it lets you enlarge things.

369
00:14:55.860 --> 00:14:59.010
So, it's up to you to see what works best for you,

370
00:14:59.010 --> 00:15:03.360
but I wouldn't discount using the phone magnifier apps first

371
00:15:03.360 --> 00:15:04.800
and see if those work for you.

372
00:15:04.800 --> 00:15:06.330
You can even use them at a distance

373
00:15:06.330 --> 00:15:08.700
and enlarge things within some degree of distance

374
00:15:08.700 --> 00:15:12.030
so they can serve a function as a binocular as well.

375
00:15:12.030 --> 00:15:14.010
And again, Hadley can help train you

376
00:15:14.010 --> 00:15:17.310
with these items and how to use them.

377
00:15:17.310 --> 00:15:20.320
I think the projector is another item

378
00:15:21.270 --> 00:15:23.010
for someone with low vision to consider

379
00:15:23.010 --> 00:15:25.320
how to interact throughout the service,

380
00:15:25.320 --> 00:15:27.630
and some churches put everything on the projector.

381
00:15:27.630 --> 00:15:30.210
A lot have moved to that and away from bulletins,

382
00:15:30.210 --> 00:15:32.430
but there are many solutions here as well.

383
00:15:32.430 --> 00:15:35.220
So again, I would ask the church administrator

384
00:15:35.220 --> 00:15:40.220
to send you the slides for the PowerPoint before Sunday

385
00:15:40.650 --> 00:15:44.220
and then view that on your tablet or phone.

386
00:15:44.220 --> 00:15:45.750
And you're probably going to load them

387
00:15:45.750 --> 00:15:48.120
into the PowerPoint app, which is great

388
00:15:48.120 --> 00:15:49.680
and very easy to use.

389
00:15:49.680 --> 00:15:52.110
Or they could send you PDFs of the slides

390
00:15:52.110 --> 00:15:54.240
and you could use a PDF viewer app.

391
00:15:54.240 --> 00:15:56.760
Usually iOS and Android have them just built

392
00:15:56.760 --> 00:15:59.010
in into the operating system.

393
00:15:59.010 --> 00:16:01.560
But let's say again, you don't have the digital version

394
00:16:01.560 --> 00:16:03.420
to view on your tablet or phone.

395
00:16:03.420 --> 00:16:07.830
That's when I would use a binocular and a handheld device.

396
00:16:07.830 --> 00:16:11.430
The ideal just for ease of use for an hour long service is

397
00:16:11.430 --> 00:16:13.740
to have a binocular mounted to your glasses.

398
00:16:13.740 --> 00:16:16.890
But usually, those only go up to about 3x in power.

399
00:16:16.890 --> 00:16:18.810
That may not be enough for you.

400
00:16:18.810 --> 00:16:21.510
The handhelds can go up to about 8x or 10x,

401
00:16:21.510 --> 00:16:24.270
and so you may need to use a handheld one.

402
00:16:24.270 --> 00:16:27.030
You really don't need to keep it to your eye the whole time

403
00:16:27.030 --> 00:16:28.920
throughout the service if you're using a handheld.

404
00:16:28.920 --> 00:16:30.480
You just need to read it for a time,

405
00:16:30.480 --> 00:16:33.030
put it down and that's very doable.

406
00:16:33.030 --> 00:16:36.060
On Amazon, there's a lot of very affordable

407
00:16:36.060 --> 00:16:38.550
handheld binoculars that have come onto the market.

408
00:16:38.550 --> 00:16:40.290
These used to be very expensive,

409
00:16:40.290 --> 00:16:42.600
but I've recently bought some inexpensive ones

410
00:16:42.600 --> 00:16:43.433
and they're great.

411
00:16:43.433 --> 00:16:46.800
They're actually just as good as the expensive ones I used

412
00:16:46.800 --> 00:16:48.930
to have to buy years ago.

413
00:16:48.930 --> 00:16:51.030
And again, Hadley is a wonderful resource.

414
00:16:51.030 --> 00:16:53.430
They can help you, advise you on these tools

415
00:16:53.430 --> 00:16:54.263
if you need them.

416
00:16:54.263 --> 00:16:56.460
Or talk to your low vision doctor

417
00:16:56.460 --> 00:16:58.890
and they very well may have at their facility

418
00:16:58.890 --> 00:17:00.870
all of these items for you to experiment with

419
00:17:00.870 --> 00:17:03.240
and they can advise you what power you may need

420
00:17:03.240 --> 00:17:04.440
for your vision.

421
00:17:04.440 --> 00:17:05.273
Exactly.

422
00:17:05.273 --> 00:17:09.780
And just helping to build that toolbox as you say.

423
00:17:09.780 --> 00:17:11.550
You got it. Exactly.

424
00:17:11.550 --> 00:17:15.450
So, outside the service itself,

425
00:17:15.450 --> 00:17:17.940
there are many, many activities

426
00:17:17.940 --> 00:17:21.300
and why would you not want to be a part

427
00:17:21.300 --> 00:17:22.650
of those things just

428
00:17:22.650 --> 00:17:24.600
because you're experiencing vision loss?

429
00:17:24.600 --> 00:17:26.100
Maybe you want to be in the choir,

430
00:17:26.100 --> 00:17:29.820
maybe you want to attend the Bible study.

431
00:17:29.820 --> 00:17:34.800
You want to be participating equally in those things,

432
00:17:34.800 --> 00:17:36.720
but there might be some things

433
00:17:36.720 --> 00:17:38.220
that you have to think through.

434
00:17:38.220 --> 00:17:41.670
Are there ways that people can prepare

435
00:17:41.670 --> 00:17:43.830
so that they can fully participate

436
00:17:43.830 --> 00:17:48.830
in those extra things that are so important,

437
00:17:49.470 --> 00:17:51.360
even beyond the service?

438
00:17:51.360 --> 00:17:53.910
Sure. Well, for the choir, I sing in the choir,

439
00:17:53.910 --> 00:17:58.230
and I would say you need to have the hymns scanned

440
00:17:58.230 --> 00:18:01.500
and use them on a tablet to see them.

441
00:18:01.500 --> 00:18:03.600
And I have another person in our choir who has low vision,

442
00:18:03.600 --> 00:18:05.010
and he does the same thing.

443
00:18:05.010 --> 00:18:06.210
It can be a little challenging

444
00:18:06.210 --> 00:18:08.880
just because choral music can be small,

445
00:18:08.880 --> 00:18:10.590
but I also think it's important

446
00:18:10.590 --> 00:18:13.200
to sing it a few times before you go to rehearsal,

447
00:18:13.200 --> 00:18:14.160
so you have the tune.

448
00:18:14.160 --> 00:18:16.110
So at least maybe you have to pay more attention

449
00:18:16.110 --> 00:18:19.650
to the words with your vision, but it's certainly doable.

450
00:18:19.650 --> 00:18:22.800
With bible study, again, I would prep before you go,

451
00:18:22.800 --> 00:18:24.570
talk to the teacher about your needs

452
00:18:24.570 --> 00:18:26.910
and to understand what the class entails.

453
00:18:26.910 --> 00:18:28.890
Don't hesitate to ask a fellow participant

454
00:18:28.890 --> 00:18:30.840
to help you with maybe reading something

455
00:18:30.840 --> 00:18:33.810
or if you just get lost in a reading of where you are,

456
00:18:33.810 --> 00:18:34.770
it's no big deal.

457
00:18:34.770 --> 00:18:36.870
But I think just a philosophy to bear

458
00:18:36.870 --> 00:18:38.850
in mind is that you are your own advocate.

459
00:18:38.850 --> 00:18:41.700
It's something the IEP specialists

460
00:18:41.700 --> 00:18:42.750
when I was going through school

461
00:18:42.750 --> 00:18:45.037
would share with me repeatedly,

462
00:18:45.037 --> 00:18:46.530
"Scott, we're glad to help you."

463
00:18:46.530 --> 00:18:50.670
And over time, if you have a disability,

464
00:18:50.670 --> 00:18:52.890
you've got to tell others what you need.

465
00:18:52.890 --> 00:18:56.790
And 99% of the time, people are glad to help you in life.

466
00:18:56.790 --> 00:18:59.043
And for the 1% who aren't, we pray for them,

467
00:19:00.300 --> 00:19:01.860
and you move on, and you brush it off

468
00:19:01.860 --> 00:19:03.390
and you don't let it get to you

469
00:19:03.390 --> 00:19:05.610
because you know that virtually everyone else

470
00:19:05.610 --> 00:19:07.020
has no problem.

471
00:19:07.020 --> 00:19:10.530
And in fact, it's a joy for them to help you

472
00:19:10.530 --> 00:19:13.590
or assist you with something specific you need.

473
00:19:13.590 --> 00:19:15.607
Going down to more specifics,

474
00:19:15.607 --> 00:19:17.610
let's focus on the Bible study setting

475
00:19:17.610 --> 00:19:19.263
and just work with that.

476
00:19:19.263 --> 00:19:21.540
Again, you need to bring a tablet or a laptop with you.

477
00:19:21.540 --> 00:19:24.120
I think with low vision, tablets work better

478
00:19:24.120 --> 00:19:25.320
because you can hold them,

479
00:19:25.320 --> 00:19:27.660
and you can also put them on stands on a table.

480
00:19:27.660 --> 00:19:29.190
That's nice for your hands.

481
00:19:29.190 --> 00:19:31.200
Some stands you can get will lift them up a little bit,

482
00:19:31.200 --> 00:19:32.490
which can also help you.

483
00:19:32.490 --> 00:19:34.800
The apps are important to consider.

484
00:19:34.800 --> 00:19:38.520
There's a great bible study app called Bible Study

485
00:19:38.520 --> 00:19:39.510
by Olive Tree.

486
00:19:39.510 --> 00:19:40.890
That's the software developer,

487
00:19:40.890 --> 00:19:42.810
but you can just search in either the Android

488
00:19:42.810 --> 00:19:44.310
or iOS store for Bible study.

489
00:19:44.310 --> 00:19:45.143
It'll come right up.

490
00:19:45.143 --> 00:19:47.070
It has a picture of a green tree.

491
00:19:47.070 --> 00:19:49.440
What's nice is you can enlarge text size

492
00:19:49.440 --> 00:19:51.930
and change colors as much as you want,

493
00:19:51.930 --> 00:19:53.280
so it's very adaptable.

494
00:19:53.280 --> 00:19:54.660
You can highlight and take notes.

495
00:19:54.660 --> 00:19:56.160
You can compare translations

496
00:19:56.160 --> 00:19:58.050
and you can purchase study Bibles

497
00:19:58.050 --> 00:20:02.280
and commentaries to supplement the text of the Bible itself.

498
00:20:02.280 --> 00:20:04.110
So, it's a very powerful tool.

499
00:20:04.110 --> 00:20:05.610
But let's say there's a book study.

500
00:20:05.610 --> 00:20:07.110
Depending on your vision

501
00:20:07.110 --> 00:20:09.480
and if you're able to read printed texts

502
00:20:09.480 --> 00:20:13.500
on say on a computer, Kindle can be a great option.

503
00:20:13.500 --> 00:20:16.110
And virtually every book you can imagine is on Kindle.

504
00:20:16.110 --> 00:20:17.490
If you need it to be read audibly to you,

505
00:20:17.490 --> 00:20:20.010
I like to use Voiceover on iOS,

506
00:20:20.010 --> 00:20:22.230
and Voiceover can read Kindle books to you.

507
00:20:22.230 --> 00:20:23.220
But talk to Hadley,

508
00:20:23.220 --> 00:20:25.500
they can show you the steps of how to use Voiceover.

509
00:20:25.500 --> 00:20:27.500
It takes a little bit of training.

510
00:20:27.500 --> 00:20:31.200
The Voice Dream Reader app is phenomenal

511
00:20:31.200 --> 00:20:34.260
and that's available on iOS and Mac.

512
00:20:34.260 --> 00:20:37.020
I don't think it's available on Windows, I could be wrong.

513
00:20:37.020 --> 00:20:39.120
But it allows you to take EPUB files.

514
00:20:39.120 --> 00:20:42.150
It's a certain type of book format, put them in

515
00:20:42.150 --> 00:20:43.560
and then it can read it back to you.

516
00:20:43.560 --> 00:20:46.110
You can also see it so it's not just audio

517
00:20:46.110 --> 00:20:48.150
and you can annotate and even connects

518
00:20:48.150 --> 00:20:49.860
into services like Bookshare

519
00:20:49.860 --> 00:20:51.300
that you pay a membership fee

520
00:20:51.300 --> 00:20:53.400
and then you can download pretty much every book

521
00:20:53.400 --> 00:20:56.100
you can imagine into Voice Dream directly and read it.

522
00:20:56.100 --> 00:20:58.710
Audible is great to listen to books.

523
00:20:58.710 --> 00:21:02.130
And then for handouts in class, just ask for PDF files from

524
00:21:02.130 --> 00:21:04.650
the teacher or Word files beforehand or again,

525
00:21:04.650 --> 00:21:06.690
we go back to the digital magnifier solution

526
00:21:06.690 --> 00:21:08.220
if it's in print.

527
00:21:08.220 --> 00:21:10.080
Right. And that is an important thing

528
00:21:10.080 --> 00:21:15.080
to know is that this material already exists digitally.

529
00:21:15.150 --> 00:21:17.340
It wasn't handwritten by someone,

530
00:21:17.340 --> 00:21:20.940
so they sent that digital copy to the printer.

531
00:21:20.940 --> 00:21:24.210
It's just as easy to send that digital copy to you

532
00:21:24.210 --> 00:21:27.720
via email so that you can take advantage of that.

533
00:21:27.720 --> 00:21:29.790
You alluded earlier, Scott,

534
00:21:29.790 --> 00:21:33.780
to the idea of just how important it is

535
00:21:33.780 --> 00:21:38.670
to be together as we worship.

536
00:21:38.670 --> 00:21:40.710
So, fellowship is so important

537
00:21:40.710 --> 00:21:44.190
and having virtual services

538
00:21:44.190 --> 00:21:47.850
is a really nice thing, especially during the pandemic.

539
00:21:47.850 --> 00:21:52.080
Now people may be ready to attend in person again,

540
00:21:52.080 --> 00:21:54.000
but it feels complicated,

541
00:21:54.000 --> 00:21:57.000
either because they've lost more vision over that time

542
00:21:57.000 --> 00:21:59.100
or are just out of practice or again,

543
00:21:59.100 --> 00:22:00.683
just want to approach this

544
00:22:00.683 --> 00:22:04.170
and are really concerned about some

545
00:22:04.170 --> 00:22:05.580
of the social aspects

546
00:22:05.580 --> 00:22:07.620
that have become a little more difficult.

547
00:22:07.620 --> 00:22:10.020
I can't nod to people and say hello

548
00:22:10.020 --> 00:22:12.480
because I don't really see faces anymore.

549
00:22:12.480 --> 00:22:14.250
I can't make that eye contact.

550
00:22:14.250 --> 00:22:18.300
Or maybe I'm brand new to the community

551
00:22:18.300 --> 00:22:20.400
and how do I meet people?

552
00:22:20.400 --> 00:22:23.520
And that's not even talking about the refreshments table,

553
00:22:23.520 --> 00:22:25.980
which is its own fun little nightmare.

554
00:22:25.980 --> 00:22:30.000
So, what are some ways that people can approach this

555
00:22:30.000 --> 00:22:33.390
in a way that takes a lot of the stress out

556
00:22:33.390 --> 00:22:36.930
and gets to that nitty-gritty of connecting with people,

557
00:22:36.930 --> 00:22:39.180
which is what they really want to do?

558
00:22:39.180 --> 00:22:40.680
Ricky, I think starting out

559
00:22:40.680 --> 00:22:44.100
by naming the emotional struggle of this is important,

560
00:22:44.100 --> 00:22:47.040
like we talked about in relation to the driving issue.

561
00:22:47.040 --> 00:22:49.170
You're going through a lot internally

562
00:22:49.170 --> 00:22:50.040
with something like this,

563
00:22:50.040 --> 00:22:52.590
especially if you're in a new faith community

564
00:22:52.590 --> 00:22:56.100
or maybe you recently lost your vision later in life.

565
00:22:56.100 --> 00:22:57.540
And so, this is all very new,

566
00:22:57.540 --> 00:23:00.000
even if you're still in the same faith community.

567
00:23:00.000 --> 00:23:01.770
It's important whenever we go through something

568
00:23:01.770 --> 00:23:02.910
in life that's very emotional,

569
00:23:02.910 --> 00:23:04.530
that we take time to reflect on that

570
00:23:04.530 --> 00:23:06.810
and not just bury that emotion,

571
00:23:06.810 --> 00:23:09.930
but really put our finger on it and explore that.

572
00:23:09.930 --> 00:23:12.510
Because I think so much of life is awareness,

573
00:23:12.510 --> 00:23:14.640
that when you can touch that emotion

574
00:23:14.640 --> 00:23:17.940
and connect with that vulnerability, it then, in a way,

575
00:23:17.940 --> 00:23:21.660
helps you to not let it be so frightening

576
00:23:21.660 --> 00:23:24.630
and for you when you encounter it again,

577
00:23:24.630 --> 00:23:26.220
say when you're actually in the moment

578
00:23:26.220 --> 00:23:28.514
of fellowship after worship to say,

579
00:23:28.514 --> 00:23:29.670
"Oh, I know what this is.

580
00:23:29.670 --> 00:23:33.300
I've felt this before and there are many ways

581
00:23:33.300 --> 00:23:36.060
that I can adapt in this situation

582
00:23:36.060 --> 00:23:38.400
and I'm not going to let this fear prevent me

583
00:23:38.400 --> 00:23:39.720
from connecting with people."

584
00:23:39.720 --> 00:23:40.920
Because we're going to talk

585
00:23:40.920 --> 00:23:43.830
about there really are many ways to overcome this.

586
00:23:43.830 --> 00:23:46.650
So one is, and I want to mention, Ricky,

587
00:23:46.650 --> 00:23:48.390
I really appreciated your conversation

588
00:23:48.390 --> 00:23:51.600
with Hannah Fairbairn on December 8th

589
00:23:51.600 --> 00:23:54.930
on ways to socialize with low vision or blindness,

590
00:23:54.930 --> 00:23:57.385
and she's informed a lot of these comments.

591
00:23:57.385 --> 00:23:58.710
So, you may find it helpful, the listener,

592
00:23:58.710 --> 00:24:01.320
to go and listen to Hannah's excellent talk.

593
00:24:01.320 --> 00:24:04.830
It's great to go to worship anytime you can in pairs

594
00:24:04.830 --> 00:24:07.950
or with a group and stay with your other person

595
00:24:07.950 --> 00:24:10.380
or your group during the fellowship hour.

596
00:24:10.380 --> 00:24:12.090
It could be a spouse or a family member

597
00:24:12.090 --> 00:24:14.220
or a friend you sat with in the service.

598
00:24:14.220 --> 00:24:16.620
And depending on your vision level,

599
00:24:16.620 --> 00:24:18.600
if you really have trouble with faces

600
00:24:18.600 --> 00:24:21.540
and seeing people in a room, I do have this at times,

601
00:24:21.540 --> 00:24:23.400
depending on the room and the lighting,

602
00:24:23.400 --> 00:24:26.730
ask them to point out where people are,

603
00:24:26.730 --> 00:24:29.310
especially if you want to connect with certain people

604
00:24:29.310 --> 00:24:31.920
or have them look for a group

605
00:24:31.920 --> 00:24:33.840
and they can guide you into that group.

606
00:24:33.840 --> 00:24:35.190
That's a great thing to do.

607
00:24:35.190 --> 00:24:38.610
Another one is let's say that you are alone.

608
00:24:38.610 --> 00:24:40.260
That's certainly a possibility.

609
00:24:40.260 --> 00:24:43.350
I would suggest standing and not sitting.

610
00:24:43.350 --> 00:24:45.510
And if someone wants to guide you

611
00:24:45.510 --> 00:24:46.957
and let's say an attendant says,

612
00:24:46.957 --> 00:24:48.720
"Oh, well, you can sit over here in the corner,"

613
00:24:48.720 --> 00:24:51.240
don't let them put you in the corner.

614
00:24:51.240 --> 00:24:53.460
You'll feel disempowered if you're over there sitting,

615
00:24:53.460 --> 00:24:54.900
I think, in most situations,

616
00:24:54.900 --> 00:24:57.480
especially if everyone's standing up and socializing.

617
00:24:57.480 --> 00:24:59.130
Try to remain standing.

618
00:24:59.130 --> 00:25:02.310
And if you need to remain stationary somewhere,

619
00:25:02.310 --> 00:25:04.410
try to stand where the action is,

620
00:25:04.410 --> 00:25:06.840
which is usually near the refreshment table.

621
00:25:06.840 --> 00:25:08.850
You don't want to be in the way of the line,

622
00:25:08.850 --> 00:25:10.860
but you can hover in that area.

623
00:25:10.860 --> 00:25:12.240
People will have no idea

624
00:25:12.240 --> 00:25:15.630
that you're intentionally standing there

625
00:25:15.630 --> 00:25:18.393
and just let people come up to you.

626
00:25:19.823 --> 00:25:21.510
And if you feel comfortable approaching groups

627
00:25:21.510 --> 00:25:24.420
and you're by yourself, look for an opening in the circle

628
00:25:24.420 --> 00:25:27.960
and walk up to the circle and say hello.

629
00:25:27.960 --> 00:25:30.630
And especially if someone knows you, they'll greet you.

630
00:25:30.630 --> 00:25:32.910
But let's say you don't know anyone in that circle.

631
00:25:32.910 --> 00:25:35.670
That can be an especially difficult situation.

632
00:25:35.670 --> 00:25:38.190
A line that I will say when I walk up to a new group

633
00:25:38.190 --> 00:25:40.050
and I don't know people sometimes,

634
00:25:40.050 --> 00:25:41.820
or maybe I know one person there,

635
00:25:41.820 --> 00:25:42.960
but I've forgotten their name

636
00:25:42.960 --> 00:25:45.397
or I can't see them clearly is I'll just say to the group,

637
00:25:45.397 --> 00:25:48.390
"Hey, I have low vision, could you help me with your names?"

638
00:25:48.390 --> 00:25:50.340
And that really is a relevant line to say,

639
00:25:50.340 --> 00:25:52.560
especially in a church situation, because many times,

640
00:25:52.560 --> 00:25:54.090
people have name tags on

641
00:25:54.090 --> 00:25:56.490
and they think they don't need to tell you their name

642
00:25:56.490 --> 00:25:58.830
because they have their name tag,

643
00:25:58.830 --> 00:25:59.663
and I've had people say that.

644
00:25:59.663 --> 00:26:01.170
"Well, I have a name tag on."

645
00:26:01.170 --> 00:26:03.720
I say, "Well, name tags don't work for me, I'm sorry."

646
00:26:03.720 --> 00:26:05.100
And then they're like, "Oh, okay."

647
00:26:05.100 --> 00:26:06.750
Again, it's like this thing,

648
00:26:06.750 --> 00:26:08.640
they just don't know you have low vision.

649
00:26:08.640 --> 00:26:10.620
And once they know that, they're very empathetic

650
00:26:10.620 --> 00:26:11.970
and glad to help.

651
00:26:11.970 --> 00:26:13.530
And they say, "Oh, well, my name is Jim."

652
00:26:13.530 --> 00:26:15.030
And then you share,

653
00:26:15.030 --> 00:26:17.490
and you can even do that if you've met them 10 times

654
00:26:17.490 --> 00:26:18.323
in a row.

655
00:26:18.323 --> 00:26:20.250
I'll say that it's like the ultimate card.

656
00:26:20.250 --> 00:26:23.430
If you forget someone's name, "I have low vision.

657
00:26:23.430 --> 00:26:25.237
I have trouble seeing. Can you help me?"

658
00:26:25.237 --> 00:26:26.739
"Oh."

659
00:26:26.739 --> 00:26:28.920
And then they'll usually, over time in a community,

660
00:26:28.920 --> 00:26:30.487
they know, and they'll come up to you and they'll say,

661
00:26:30.487 --> 00:26:31.590
"Oh. Hey Scott.

662
00:26:31.590 --> 00:26:32.647
It's Lisa."

663
00:26:32.647 --> 00:26:34.680
"Oh, great to see you, Lisa."

664
00:26:34.680 --> 00:26:36.690
Because ideally in a church community,

665
00:26:36.690 --> 00:26:39.180
we should be a people of compassion and sensitivity,

666
00:26:39.180 --> 00:26:42.030
and so people are thinking in that frame,

667
00:26:42.030 --> 00:26:44.070
and they want to be helpful.

668
00:26:44.070 --> 00:26:47.640
Another topic to consider is the refreshment table.

669
00:26:47.640 --> 00:26:50.130
So here, just speaking briefly, high level,

670
00:26:50.130 --> 00:26:51.660
ask your family member or friend

671
00:26:51.660 --> 00:26:54.330
if you need them to serve you a plate.

672
00:26:54.330 --> 00:26:57.300
But let's say you don't want someone to do that for you.

673
00:26:57.300 --> 00:26:58.710
I don't like doing that personally.

674
00:26:58.710 --> 00:27:00.810
So, I go and I serve myself a plate,

675
00:27:00.810 --> 00:27:03.450
but there are times you have no idea what food

676
00:27:03.450 --> 00:27:04.380
is on that table.

677
00:27:04.380 --> 00:27:05.213
And you know what?

678
00:27:05.213 --> 00:27:06.450
A lot of other people don't know what

679
00:27:06.450 --> 00:27:09.810
that thing is either half the time, especially casseroles.

680
00:27:09.810 --> 00:27:11.865
What is it? A casserole.

681
00:27:11.865 --> 00:27:12.847
So, you can make it a joke.

682
00:27:12.847 --> 00:27:14.370
"Do you know what that is?"

683
00:27:14.370 --> 00:27:15.203
Just say it like that.

684
00:27:15.203 --> 00:27:17.760
"Oh, that has chicken in it and da, da, da, da, da."

685
00:27:17.760 --> 00:27:19.830
Because sometimes, they put little itsy-bitsy signs

686
00:27:19.830 --> 00:27:21.480
in front of it or nothing.

687
00:27:21.480 --> 00:27:23.250
So, there's a way you can joke with people,

688
00:27:23.250 --> 00:27:25.920
and they have no idea that you're even trying to assess

689
00:27:25.920 --> 00:27:27.993
because of vision reasons what it is.

690
00:27:29.049 --> 00:27:29.882
And just take your time.

691
00:27:29.882 --> 00:27:31.590
Let someone know if you need help.

692
00:27:31.590 --> 00:27:33.630
But again, you need to be your own advocate.

693
00:27:33.630 --> 00:27:35.100
If you need help, ask someone

694
00:27:35.100 --> 00:27:36.840
and people are glad to help you.

695
00:27:36.840 --> 00:27:37.673
Perfect.

696
00:27:37.673 --> 00:27:40.590
Those are some really great practical solutions

697
00:27:40.590 --> 00:27:45.060
to problems that I think can feel insurmountable,

698
00:27:45.060 --> 00:27:46.770
at least initially, when you're trying

699
00:27:46.770 --> 00:27:49.140
to navigate your way through this.

700
00:27:49.140 --> 00:27:52.830
So, it's been so helpful just to go through those things

701
00:27:52.830 --> 00:27:56.043
and again, really get some perspective on,

702
00:27:56.970 --> 00:27:59.160
it may feel difficult initially,

703
00:27:59.160 --> 00:28:01.290
but there are ways through it.

704
00:28:01.290 --> 00:28:03.990
And I think that's what people need sometimes,

705
00:28:03.990 --> 00:28:08.070
is just to know that this feels overwhelming,

706
00:28:08.070 --> 00:28:11.100
but it's not impossible.

707
00:28:11.100 --> 00:28:14.490
Scott, I want to thank you so much for stopping by

708
00:28:14.490 --> 00:28:16.950
and again, just sharing your experiences

709
00:28:16.950 --> 00:28:20.130
both as a pastor and as a person with low vision.

710
00:28:20.130 --> 00:28:22.890
It helps to have both those perspectives.

711
00:28:22.890 --> 00:28:26.370
Any final thoughts that you have before we wrap things up?

712
00:28:26.370 --> 00:28:27.750
I just say, especially to someone

713
00:28:27.750 --> 00:28:29.790
who may have lost vision later in life,

714
00:28:29.790 --> 00:28:31.590
and this is all very new,

715
00:28:31.590 --> 00:28:33.750
is to realize you're not powerless

716
00:28:33.750 --> 00:28:35.460
and you're not even disabled.

717
00:28:35.460 --> 00:28:38.700
You're differently abled and seeing yourself

718
00:28:38.700 --> 00:28:40.680
that way is really a game changer.

719
00:28:40.680 --> 00:28:42.630
It's a perspective shift.

720
00:28:42.630 --> 00:28:45.240
And trying to be aware of the emotions

721
00:28:45.240 --> 00:28:47.280
that you're going through, putting your finger on that,

722
00:28:47.280 --> 00:28:49.170
not letting that debilitate you,

723
00:28:49.170 --> 00:28:51.300
but having that mindset of, "Okay. I feel this.

724
00:28:51.300 --> 00:28:53.850
How can I overcome this and adapt,"

725
00:28:53.850 --> 00:28:56.820
and find a way to remain active in your faith community

726
00:28:56.820 --> 00:28:58.530
and in all areas of life?

727
00:28:58.530 --> 00:29:01.260
Fantastic. Thank you so much for joining us.

728
00:29:01.260 --> 00:29:02.709
Thank you, Ricky.

729
00:29:02.709 --> 00:29:04.650
It was a pleasure to be here with you and your audience.

730
00:29:04.650 --> 00:29:06.180
Got something to say?

731
00:29:06.180 --> 00:29:09.240
Share your thoughts about this episode of "Hadley Presents"

732
00:29:09.240 --> 00:29:11.820
or make suggestions for future episodes.

733
00:29:11.820 --> 00:29:13.440
We'd love to hear from you.

734
00:29:13.440 --> 00:29:17.730
Send us an email at podcast@hadley.edu.

735
00:29:17.730 --> 00:29:22.730
That's P-O-D-C-A-S-T @hadley.edu.

736
00:29:22.980 --> 00:29:25.987
Or leave us a message at 847-784-2870.

737
00:29:29.370 --> 00:29:30.513
Thanks for listening.

