WEBVTT

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When you're the only person you know with vision loss,

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it's easy to feel like you're going through it alone.

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In this episode, Hadley's Marc Arneson joins us

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as we talk about our sister podcast,

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"Insights &amp; Sound Bites," where people share

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what has helped them to cope and adjust.

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I'm Ricky Enger, and this is "Hadley Presents."

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Welcome to the show, Marc.

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Thanks, Ricky.

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So good to be back.

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Yes, it has been a while, and in fact,

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you've had a title change since the last time

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you were here, and so have I for that matter so-

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That's right.

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You are now, what's your title?

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My title is director of emotional

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and social support here at Hadley.

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So some of the new things that we're doing to try

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and help with some of the emotional challenges

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that come with vision loss,

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I'm getting involved in some of that.

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Yes, awesome.

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And I am the director of practical help.

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So the reason I bring this up is we will be hearing

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a few stories today that kind of

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encapsulate both those things.

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And I don't know why I find that surprising

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because when you're going through an adjustment like this,

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or maybe your vision loss has always been at the level

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it is now, but you're living in a world

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that isn't necessarily designed for you,

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there's both of those challenges, right?

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The practical help, you know, what do I do?

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How do I figure out how to find my way around

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or cook or clean?

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And then of course there's your side, Marc.

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So what are the things that people tend to deal with

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from the social emotional side?

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You know, some of the things that I often hear from folks

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who are reaching out to us is sometimes

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they're the only person they know

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that is dealing with vision loss

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and there can be a lot of isolation with that

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and some loneliness.

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And you know, as the vision continues to decline, you know,

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relationships change, you know,

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both dynamics within perhaps a marriage

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or parent-child relationships or even friendships.

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And so, you know, oftentimes, we're trying to help folks

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find a space where they can kind of talk about that

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and explore some of that stuff.

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And I think one thing that really helps people

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is to know you are not alone.

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It's not just you who's going through whatever this is.

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And while every person's story is different,

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there do seem to be just some common threads

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I feel like that come up over and over again.

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And that's one of the reasons

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that we have created the sister podcast

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"Insights &amp; Sound Bites" so it's where people call us

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or send us recordings through our website

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and we'll talk about how to do that at the end of this.

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But people who are willing to share their stories.

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And I think it's been tremendous just hearing from people.

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It's interesting, Ricky, in preparation for this,

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and you know, just in thinking ahead about this time today,

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I spent some time listening to

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some of the different episodes, and you're right,

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there are just some common themes that we hear from folks,

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but they're just so powerful.

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These personal stories, you know, of challenges

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that some of our members are facing,

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but then, you know, how they've overcome.

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But I know that, you know, it is really cool

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to hear the ways that folks are managing

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some of these difficult situations

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and coming out with more hope.

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Absolutely.

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So in this episode, we're just gonna play a few of these

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and we'll comment on them.

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You know, we'll keep it short because

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it's really about sharing these stories

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more than what we have to say about them.

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They're all so, so good.

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And I think the ones we've chosen

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are just some of the top things that we hear from people.

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And one of those things is,

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"Hey, this was such a surprise to me.

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It came out of nowhere."

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And then, "How do I deal with that?"

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So to represent that, up first we're gonna hear from Emma.

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My name is Emma D.

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I am 77 years old.

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I live in Illinois.

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My blindness occurred four years ago.

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It took me totally surprised.

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I went to the doctor, like, in November,

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found out I went blind in March.

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I had no kind of preparation.

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And that's what bothered me the most.

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And I had to get past psychologically

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because I didn't have time to prepare myself.

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And I am an avid reader, I was a teacher,

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and I loved to travel.

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I mean, travel was my thing.

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Seeing things, writing down things,

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sending memos out to people, sending cars out to people.

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That was my love, and it kept me going for years.

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All of a sudden, I went blind.

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I had been around maybe

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just a couple of blind people in my life.

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I didn't know the struggles that they had.

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I didn't know the challenges they had.

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But then when it hit me smack in the face,

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it was totally different.

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It was something that it was hard for me to accept.

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I never really said "Why me?" but I did say, "Why?"

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And right now, I'm gonna be honest with you,

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I wanna see right now.

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I miss the sun.

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I haven't seen the sun in four years.

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I miss my reading.

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I couldn't even write my own name.

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It's hard enough being blind and you feel sort of insecure

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and your self-esteem has sort of plummeted.

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Blindness is not only blindness.

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Blindness is psychologically, it's physically,

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it's mentally, it's spiritually, it's anything you wanna say

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because when you are blind, you have to start all over.

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The frustrating times that I run into

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is when I turn around sometimes and I get lost.

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You can get lost in your own home

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and then I have to feel something to bring my sight back

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and I just sometimes have to just stop and scream.

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And then I settle down and I pray and I touch something

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and I remember this is where I am.

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Emma, this is where you are.

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Settle down, this is where you are.

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This is something you're going through.

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This isn't the end of the road for you.

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You're going through it.

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So just deal with it with as much grace as you can.

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And that's how I make it on a day-to-day basis.

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Knowing this, as far as I'm concerned,

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and that's how I make it.

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I feel like I am alone a lot of times.

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Even though there's people sitting next to me,

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I don't know whether there's a chair here,

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a stool here or whatever.

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So this vast darkness is just here.

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And you do feel like you're alone,

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even though a lot of times you in a room of people,

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you feel like you're alone.

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Then sometimes you have people.

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I have a good peer group and I got people all around me

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like all my ladies.

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We can laugh together.

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We come pray together.

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They give me their experiences

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and it feels like I am not alone.

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People have been my foundation

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when I didn't even know they were here for me.

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They were here.

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And just a telephone call helps you through the day.

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Just a kind word helps you through the day.

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Just knowing someone thinking about you

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helps you through the day.

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And that's how I deal with my blindness.

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Wow, she really said a lot, right?

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So just that no holds barred, "It's bad sometimes."

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And yet I do feel like there was that hope, right?

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Just listening to Emma, I'm like, gosh, it's so powerful.

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I actually was on the phone with her when we recorded this

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and I just remember just sitting there

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just being amazed at her story.

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And she's such a good storyteller

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and the way that she just shares her life,

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she's so open and vulnerable.

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And I remember just sitting at her feet

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as she shared her story and it was just so cool to hear.

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Absolutely, I love how she takes us through

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kind of the darkest parts of it,

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but also the joy that she has

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and who is helping her and how.

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So very powerful.

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So next up, we are going to hear from Albert.

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He found his own bit of salvation

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and something that helps him cope.

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My name is Albert Papazoni.

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I live in Houston, Texas, and I'm 63 years old.

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When I got into my early 50s,

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I started noticing my vision decreasing very rapidly.

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And what I found is that I had a genetic issue

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that skipped a generation.

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So today I would say I have maybe 10% vision,

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depending on the lighting and stress level, of course.

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You wouldn't believe it, but that does have a huge impact.

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Can't read hard copy paper any longer.

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And probably the biggest one is I have to plan my day

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a little more than the average person.

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You know, in the past, it was jump in the car,

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run to the store, get a quart of milk.

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I can't do that as easily.

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I went to the Humane Society.

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I ended up getting two cats, so they wanna lay in my lap.

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The minute I come in the door, they follow me to my chair.

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And animals are so smart, but I sit in my chair

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and they both wanna pop up there and sit in my lap

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and that's very comforting.

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So I found a lot of comfort in my cats.

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And maybe they know I saved them.

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Maybe there's a little bit of that too, I don't know.

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But they certainly helped me.

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That just makes me smile.

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Any stories about animals make me smile.

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We recently lost our cat, unfortunately,

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but she definitely knew, and he's so right.

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Animals are smart.

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They can figure out, "Oh, you can't see me,

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so maybe I shouldn't be under your feet quite as much."

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(Ricky and Marc laugh)

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You're so right, Ricky.

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I was just smiling listening to Albert that whole time

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talking about his comfort cats.

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It's just so nice.

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Yes, absolutely.

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And if you're listening and you're thinking,

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"I'm not sure if I can care for my pets.

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Are there different things that I need to think about?"

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You know, it's important to know there are ways to do that.

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In fact, Hadley has a couple of workshops on those things

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to keep in mind, like, measuring the medication

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and different things that you might need

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to know to care for your pets effectively

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and it's certainly possible and so very rewarding, right?

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Yeah, yeah.

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So next up, we are going to hear from Jayne.

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My name is Jayne Surrena and I'm from Philadelphia.

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I went to school for painting

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and got my master's in art education.

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I had been painting and showing my art since I was 20

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and working nonprofits and teaching.

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I have retinal dystrophy.

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I didn't realize I had an issue

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until I guess the beginning of the pandemic.

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I honestly thought everyone saw

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the same way I did my entire life.

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So I went to a different eye doctor.

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They're like, "There's nothing we can do.

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That's just normal.

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It usually happens when you're older.

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We can't do anything about it."

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I felt so in the dark about everything

254
00:12:00.690 --> 00:12:03.660
and just very isolated.

255
00:12:03.660 --> 00:12:07.470
I would go online and just try to look up the terms

256
00:12:07.470 --> 00:12:09.780
that they were using 'cause I still feel, I guess,

257
00:12:09.780 --> 00:12:11.283
very vulnerable about it.

258
00:12:12.420 --> 00:12:17.420
With vision loss, so often I spend so much of my day

259
00:12:19.050 --> 00:12:23.880
trying to force myself to see things I can't see,

260
00:12:23.880 --> 00:12:27.540
like trying to focus on something

261
00:12:27.540 --> 00:12:31.407
that's blurry or not there anymore.

262
00:12:31.407 --> 00:12:34.680
And I get anxiety and I stress out about it

263
00:12:34.680 --> 00:12:39.390
and I just shut down 'cause it's never gonna come back.

264
00:12:39.390 --> 00:12:41.040
It's never gonna come into focus.

265
00:12:42.120 --> 00:12:47.120
But the one positive of everything is with my artwork,

266
00:12:50.760 --> 00:12:55.380
the fact that I can't see every imperfection

267
00:12:55.380 --> 00:12:57.720
and mistake in my artwork anymore.

268
00:12:57.720 --> 00:12:59.520
I have so much more freedom.

269
00:12:59.520 --> 00:13:04.350
And instead of spending like hours

270
00:13:04.350 --> 00:13:06.930
trying to make everything meticulous,

271
00:13:06.930 --> 00:13:11.930
I am going through pages and using colors for the first time

272
00:13:14.100 --> 00:13:19.100
and creating images that are just

273
00:13:19.590 --> 00:13:24.180
actually from like inside of me and like from emotion

274
00:13:24.180 --> 00:13:26.970
instead of trying to remember technical skills

275
00:13:26.970 --> 00:13:29.160
that I was taught in school years ago.

276
00:13:29.160 --> 00:13:34.140
Like I'm enjoying myself for the first time.

277
00:13:34.140 --> 00:13:36.330
And like I'm actually smile,

278
00:13:36.330 --> 00:13:39.420
I feel like myself smiling as I work.

279
00:13:39.420 --> 00:13:41.850
And like I step back, I'm like, yes.

280
00:13:41.850 --> 00:13:46.850
And it's there because I'm not focused on any details.

281
00:13:47.700 --> 00:13:52.273
It's just the overall piece that is,

282
00:13:54.840 --> 00:13:57.450
I just feel like it's a part of me now.

283
00:13:57.450 --> 00:13:58.440
It's a part of me now.

284
00:13:58.440 --> 00:14:01.440
That was actually the title of the episode

285
00:14:01.440 --> 00:14:04.350
and I think that sums it up so well.

286
00:14:04.350 --> 00:14:06.870
Just going from, "Wait, what is this?"

287
00:14:06.870 --> 00:14:11.870
to figuring out a way to incorporate that in her life.

288
00:14:12.540 --> 00:14:15.510
Her story actually reminds me of,

289
00:14:15.510 --> 00:14:20.490
we had another artist with vision loss, Chloe Duplessis,

290
00:14:20.490 --> 00:14:22.710
who was on "Hadley Presents."

291
00:14:22.710 --> 00:14:24.690
And she said something very similar

292
00:14:24.690 --> 00:14:28.927
where she's talking about rather than saying,

293
00:14:28.927 --> 00:14:33.600
"I have to give up my art," she finds a new way to do it

294
00:14:33.600 --> 00:14:37.500
and her art is actually better and different.

295
00:14:37.500 --> 00:14:40.261
And I appreciated her, just her honesty.

296
00:14:40.261 --> 00:14:42.095
I think she talked about how she, you know,

297
00:14:42.095 --> 00:14:44.730
is kind of forcing herself to see the things that she can't.

298
00:14:44.730 --> 00:14:46.950
And I was thinking that I'd probably be doing

299
00:14:46.950 --> 00:14:47.940
the same kind of thing.

300
00:14:47.940 --> 00:14:49.185
Right, yeah.

301
00:14:49.185 --> 00:14:51.053
Having the anxiety and to find that outlet in her art.

302
00:14:51.053 --> 00:14:53.400
I think she said she's creating from emotion

303
00:14:53.400 --> 00:14:56.490
instead of technical skills now and smiling as she worked.

304
00:14:56.490 --> 00:14:57.660
That's so cool.

305
00:14:57.660 --> 00:14:58.800
I love it.

306
00:14:58.800 --> 00:15:02.010
So next up we're going to hear from Bruce,

307
00:15:02.010 --> 00:15:04.920
and Bruce is sharing something that,

308
00:15:04.920 --> 00:15:08.550
it's one of the top things that I think about

309
00:15:08.550 --> 00:15:11.730
that people who sort of reach a certain point

310
00:15:11.730 --> 00:15:15.540
face this struggle and everyone overcomes it

311
00:15:15.540 --> 00:15:18.210
in a slightly different way.

312
00:15:18.210 --> 00:15:20.013
But let's hear Bruce's story.

313
00:15:21.120 --> 00:15:21.953
Hello.

314
00:15:21.953 --> 00:15:26.490
My name is Bruce Wyland and I live on Bainbridge Island,

315
00:15:26.490 --> 00:15:29.433
which is an island off of downtown Seattle.

316
00:15:30.390 --> 00:15:33.780
I have retinitis pigmentosa and I've watched my vision

317
00:15:33.780 --> 00:15:38.160
get narrower and narrower from the outside coming in.

318
00:15:38.160 --> 00:15:39.870
And I've adjusted to it along the way,

319
00:15:39.870 --> 00:15:43.263
giving up various things, sports, driving, et cetera.

320
00:15:44.130 --> 00:15:46.380
But it wasn't until I hit my 60s

321
00:15:46.380 --> 00:15:48.720
that my vision deterioration finally reached

322
00:15:48.720 --> 00:15:50.730
the center of my vision.

323
00:15:50.730 --> 00:15:53.940
And my tunnel vision became so narrow that

324
00:15:53.940 --> 00:15:57.240
I was literally tripping over things,

325
00:15:57.240 --> 00:16:01.620
bumping into dogs and children, open doorways.

326
00:16:01.620 --> 00:16:03.510
And as I walked around at my hometown,

327
00:16:03.510 --> 00:16:06.120
I found myself more and more embarrassed,

328
00:16:06.120 --> 00:16:08.430
apologetic to people.

329
00:16:08.430 --> 00:16:12.330
People just didn't understand about my problem

330
00:16:12.330 --> 00:16:15.120
because I was keeping it a secret.

331
00:16:15.120 --> 00:16:18.210
So the one thing I wanna recommend to people is

332
00:16:18.210 --> 00:16:21.780
when you're ready, get cane training

333
00:16:21.780 --> 00:16:24.720
and embrace the use of a cane.

334
00:16:24.720 --> 00:16:28.410
I have to say I hesitated and resisted for a long, long time

335
00:16:28.410 --> 00:16:30.810
until my wife finally convinced me

336
00:16:30.810 --> 00:16:34.110
that I had to use the cane when I walked about

337
00:16:34.110 --> 00:16:38.760
both for safety and for maximizing social interactions.

338
00:16:38.760 --> 00:16:41.250
And when I started using the cane, first of all,

339
00:16:41.250 --> 00:16:44.280
I stopped tripping over things and running into things.

340
00:16:44.280 --> 00:16:47.910
And second of all, it was a way to gently announce to people

341
00:16:47.910 --> 00:16:49.890
that I had a visual problem.

342
00:16:49.890 --> 00:16:54.890
And suddenly people who were confused or angry were helpful.

343
00:16:55.170 --> 00:16:58.830
Rather than feeling embarrassed as I was afraid I might,

344
00:16:58.830 --> 00:17:02.340
I felt like I had suddenly been given a ticket

345
00:17:02.340 --> 00:17:04.680
to travel around without embarrassment,

346
00:17:04.680 --> 00:17:08.730
without mishaps, both safer and happier.

347
00:17:08.730 --> 00:17:12.420
And the final thing I will say is I was a little afraid

348
00:17:12.420 --> 00:17:15.480
of the cane as a negative symbol.

349
00:17:15.480 --> 00:17:19.320
And I was worried that people might ridicule me

350
00:17:19.320 --> 00:17:21.750
or be less than supportive.

351
00:17:21.750 --> 00:17:23.280
And I will tell you, in the two years

352
00:17:23.280 --> 00:17:25.560
I've been using the cane, I have not had

353
00:17:25.560 --> 00:17:29.340
a single negative interaction with another person.

354
00:17:29.340 --> 00:17:34.170
People are kind, they're understanding, they are welcoming,

355
00:17:34.170 --> 00:17:37.230
and it's been a real plus for me.

356
00:17:37.230 --> 00:17:40.080
So that's my suggestion.

357
00:17:40.080 --> 00:17:43.110
When the time is right, embrace the cane.

358
00:17:43.110 --> 00:17:45.330
Thanks for listening, bye-bye.

359
00:17:45.330 --> 00:17:46.200
That's so awesome.

360
00:17:46.200 --> 00:17:49.380
He quickly encapsulated this whole journey.

361
00:17:49.380 --> 00:17:53.580
Does this come up a lot, Marc, in people that you talk with?

362
00:17:53.580 --> 00:17:55.530
Oh yes, absolutely, Ricky.

363
00:17:55.530 --> 00:17:56.700
I mean, you can imagine.

364
00:17:56.700 --> 00:17:57.533
And I love what he says,

365
00:17:57.533 --> 00:17:58.787
"When the time is right, embrace the cane."

366
00:17:58.787 --> 00:18:00.780
'Cause I think, you know, what you shared earlier,

367
00:18:00.780 --> 00:18:02.610
it's a different journey for everybody, right?

368
00:18:02.610 --> 00:18:03.600
Exactly.

369
00:18:03.600 --> 00:18:05.010
And I imagine it's different for everybody

370
00:18:05.010 --> 00:18:07.057
and it's sometimes not an easy decision to come to,

371
00:18:07.057 --> 00:18:08.910
you know, when it's the right time

372
00:18:08.910 --> 00:18:10.320
to explore using the cane.

373
00:18:10.320 --> 00:18:13.380
But I love a ticket to travel around without embarrassment.

374
00:18:13.380 --> 00:18:14.490
What a cool quote.

375
00:18:14.490 --> 00:18:16.110
Yes, that was the best.

376
00:18:16.110 --> 00:18:18.727
And just that moment of going,

377
00:18:18.727 --> 00:18:21.540
"You know, I thought it was gonna be really negative.

378
00:18:21.540 --> 00:18:25.050
And it turns out that people were actually nice about it."

379
00:18:25.050 --> 00:18:26.580
There's another episode, you probably remember it,

380
00:18:26.580 --> 00:18:28.559
Angela, where she talks about-
Yeah, Angela Delgado.

381
00:18:28.559 --> 00:18:30.450
her little secret, yep, yeah.

382
00:18:30.450 --> 00:18:32.910
And it reminded me quite a bit of Bruce's story as well.

383
00:18:32.910 --> 00:18:35.310
And I think she had a similar experience.

384
00:18:35.310 --> 00:18:37.800
I think she thought she would get different reactions

385
00:18:37.800 --> 00:18:39.060
from her family and from others

386
00:18:39.060 --> 00:18:41.790
and it was a real positive experience for her too.

387
00:18:41.790 --> 00:18:44.490
Yeah, that's amazing. (laughs)

388
00:18:44.490 --> 00:18:47.550
I just love sharing these different stories

389
00:18:47.550 --> 00:18:50.400
and that's exactly what "Insights &amp; Sound Bites" is,

390
00:18:50.400 --> 00:18:54.690
is just these little clips of people figuring out

391
00:18:54.690 --> 00:18:59.690
what it was that finally helped them to turn a corner.

392
00:19:00.390 --> 00:19:01.710
We have one last clip here,

393
00:19:01.710 --> 00:19:05.910
and I feel like it encapsulates one thing

394
00:19:05.910 --> 00:19:08.730
that we've sort of been saying all along,

395
00:19:08.730 --> 00:19:11.700
and in fact it is the title of the episode.

396
00:19:11.700 --> 00:19:13.643
So we're going to hear from Ashia.

397
00:19:15.108 --> 00:19:17.463
I'm Ashia James, Georgia.

398
00:19:18.510 --> 00:19:22.680
I was diagnosed with a rare neurological disorder

399
00:19:22.680 --> 00:19:24.843
called benign essential blepharospasm.

400
00:19:25.898 --> 00:19:30.030
And it's where I have uncontrollable eye spasms

401
00:19:30.030 --> 00:19:33.030
and I have eye closures, and I don't know

402
00:19:33.030 --> 00:19:34.260
how long they'll close.

403
00:19:34.260 --> 00:19:37.110
Sometimes they close for a few seconds,

404
00:19:37.110 --> 00:19:39.960
a few minutes or hours at a time,

405
00:19:39.960 --> 00:19:42.990
like maybe about 10 hours at a time.

406
00:19:42.990 --> 00:19:47.730
I found out about this, I think it was in September 2022,

407
00:19:49.410 --> 00:19:52.440
I started panicking because I saw that

408
00:19:52.440 --> 00:19:54.690
there was no cure for this.

409
00:19:54.690 --> 00:19:59.250
And I was hoping and praying that this was not true.

410
00:19:59.250 --> 00:20:01.590
I was afraid to go outside.

411
00:20:01.590 --> 00:20:05.160
Even walking around my house would be a challenge

412
00:20:05.160 --> 00:20:07.500
because you think you really know your house

413
00:20:07.500 --> 00:20:11.040
until you lose your vision completely.

414
00:20:11.040 --> 00:20:14.400
You struggle to figure out where you are.

415
00:20:14.400 --> 00:20:17.640
So I came across American Print House

416
00:20:17.640 --> 00:20:20.280
and I reached out to them.

417
00:20:20.280 --> 00:20:22.530
She recommended Hadley.

418
00:20:22.530 --> 00:20:26.310
And really Hadley changed my life

419
00:20:26.310 --> 00:20:30.540
because I got to hear soundbites of people

420
00:20:30.540 --> 00:20:33.120
dealing with issues just like me.

421
00:20:33.120 --> 00:20:36.360
Even though our conditions are different,

422
00:20:36.360 --> 00:20:39.510
we seem to be going through the same thing,

423
00:20:39.510 --> 00:20:42.150
dealing with it, dealing with grief,

424
00:20:42.150 --> 00:20:44.850
the stages of grief and acceptance that,

425
00:20:44.850 --> 00:20:47.460
you know, finding our way out of it.

426
00:20:47.460 --> 00:20:50.250
What gets me through the difficult moments

427
00:20:50.250 --> 00:20:54.540
is knowing that there's a community out there

428
00:20:54.540 --> 00:20:57.543
that is experiencing similar things.

429
00:20:58.500 --> 00:21:00.750
The first feeling for me was feeling

430
00:21:00.750 --> 00:21:03.210
that I'm in it by myself.

431
00:21:03.210 --> 00:21:04.980
You know, there's no one around to help me.

432
00:21:04.980 --> 00:21:06.660
They don't know what I'm going through.

433
00:21:06.660 --> 00:21:09.900
But with Hadley, that community,

434
00:21:09.900 --> 00:21:12.960
we all share similar experiences.

435
00:21:12.960 --> 00:21:17.430
Even though they may not be exactly the same, we're similar.

436
00:21:17.430 --> 00:21:22.430
And that gives me hope, faith, and confidence.

437
00:21:24.150 --> 00:21:25.470
It's said so many times,

438
00:21:25.470 --> 00:21:28.113
and I hate it to be a cliche, but it's true.

439
00:21:29.280 --> 00:21:31.110
Finding out that you're not alone

440
00:21:31.110 --> 00:21:33.753
makes the biggest difference in the world.

441
00:21:34.830 --> 00:21:36.150
As I was listening to this, I'm just so grateful

442
00:21:36.150 --> 00:21:37.807
that she found us here at Hadley

443
00:21:37.807 --> 00:21:41.220
and she's getting connected with others who understand,

444
00:21:41.220 --> 00:21:43.260
you know, her story and her challenges.

445
00:21:43.260 --> 00:21:46.470
Absolutely, because it is so powerful

446
00:21:46.470 --> 00:21:49.470
going through something by yourself,

447
00:21:49.470 --> 00:21:51.570
you think, "This is all on me.

448
00:21:51.570 --> 00:21:53.580
I have to figure it out by myself.

449
00:21:53.580 --> 00:21:55.980
My friends don't understand, my family."

450
00:21:55.980 --> 00:21:58.680
I think she said, "I feel like I'm in it by myself."

451
00:21:58.680 --> 00:22:02.340
Yeah, and then to find a group of people

452
00:22:02.340 --> 00:22:04.920
that are going through the same thing you are.

453
00:22:04.920 --> 00:22:07.800
And that actually brings up the question then.

454
00:22:07.800 --> 00:22:09.510
So if people are listening

455
00:22:09.510 --> 00:22:12.330
and "Insights &amp; Sound Bites" is new to you,

456
00:22:12.330 --> 00:22:14.610
Hadley's peer-to-peer program is new to you,

457
00:22:14.610 --> 00:22:16.080
this is the first time you're hearing

458
00:22:16.080 --> 00:22:19.140
about this sort of stuff, we'll have this information

459
00:22:19.140 --> 00:22:21.000
in our show notes, but Marc,

460
00:22:21.000 --> 00:22:23.190
I'm wondering if you could just give us

461
00:22:23.190 --> 00:22:27.060
a quick rundown for, number one, how does it work?

462
00:22:27.060 --> 00:22:29.490
How do you submit a soundbite

463
00:22:29.490 --> 00:22:32.220
and do you have to get it perfect the first time around?

464
00:22:32.220 --> 00:22:33.700
Like, take us through that.

465
00:22:33.700 --> 00:22:36.000
Yeah, so Ricky, there's lots of ways that

466
00:22:36.000 --> 00:22:37.920
you can share your story with others

467
00:22:37.920 --> 00:22:39.450
through our "Insights &amp; Sound Bites."

468
00:22:39.450 --> 00:22:41.460
One of the easiest ways is to call our 800 number

469
00:22:41.460 --> 00:22:44.790
at 1-800-323-4238,

470
00:22:44.790 --> 00:22:47.040
and the folks at our support center can get your story

471
00:22:47.040 --> 00:22:49.200
and get it out there for folks to listen to.

472
00:22:49.200 --> 00:22:51.540
You can also record directly from our website.

473
00:22:51.540 --> 00:22:53.940
There's a record button right on our site

474
00:22:53.940 --> 00:22:56.640
that you can select and just start recording

475
00:22:56.640 --> 00:22:58.020
and that'll be saved.

476
00:22:58.020 --> 00:23:01.200
And we'll have that available and we can get it that way.

477
00:23:01.200 --> 00:23:02.033
You can also call.

478
00:23:02.033 --> 00:23:05.370
There's an "Insights &amp; Sound Bites" podcast voicemail line,

479
00:23:05.370 --> 00:23:09.880
and that number is 847-512-4867.

480
00:23:09.880 --> 00:23:12.090
So if you call that number, you can just leave a message

481
00:23:12.090 --> 00:23:16.080
on our voicemail and we can get your story that way too.

482
00:23:16.080 --> 00:23:19.440
Awesome, and I know you all make it so friendly.

483
00:23:19.440 --> 00:23:23.100
It's not a nerve-wracking process.

484
00:23:23.100 --> 00:23:26.250
If you have a story and you're not quite sure

485
00:23:26.250 --> 00:23:29.670
how to tell it, Marc and his team are really good

486
00:23:29.670 --> 00:23:31.680
at kind of teasing that out of you

487
00:23:31.680 --> 00:23:34.170
and getting you to open up a bit

488
00:23:34.170 --> 00:23:38.340
and share what you need to in the way that you want

489
00:23:38.340 --> 00:23:40.920
as opposed to when I leave a voicemail,

490
00:23:40.920 --> 00:23:43.320
I'm kind of stuttering and wishing

491
00:23:43.320 --> 00:23:44.940
I could do it all over again.

492
00:23:44.940 --> 00:23:47.940
So if that's a concern, don't worry about that.

493
00:23:47.940 --> 00:23:49.890
And if you're wondering about how to listen

494
00:23:49.890 --> 00:23:53.100
to "Insights &amp; Sound Bites," you can of course

495
00:23:53.100 --> 00:23:56.970
find it on our website, but it's also available

496
00:23:56.970 --> 00:24:00.390
on places like Apple Podcasts, Spotify,

497
00:24:00.390 --> 00:24:03.600
really wherever you're getting "Hadley Presents,"

498
00:24:03.600 --> 00:24:04.987
you're also going to find

499
00:24:04.987 --> 00:24:07.320
"Insights &amp; Sound Bites" there as well.

500
00:24:07.320 --> 00:24:10.920
We do have a phone number if you would like to listen

501
00:24:10.920 --> 00:24:13.200
by phone if that's just a bit easier.

502
00:24:13.200 --> 00:24:16.803
That's 847-558-1317.

503
00:24:19.230 --> 00:24:21.510
So lots of ways to listen.

504
00:24:21.510 --> 00:24:23.250
And honestly, Ricky, it's one of my favorite parts

505
00:24:23.250 --> 00:24:25.770
of my job is, you know, hearing people's stories

506
00:24:25.770 --> 00:24:28.170
and sometimes I'll spend half an hour,

507
00:24:28.170 --> 00:24:29.850
45 minutes on the phone with somebody

508
00:24:29.850 --> 00:24:31.590
and just to be able to talk and, you know,

509
00:24:31.590 --> 00:24:33.600
we'll pull out some of our little clips

510
00:24:33.600 --> 00:24:34.800
from our conversations.

511
00:24:34.800 --> 00:24:37.350
So I really enjoy being able just to sit

512
00:24:37.350 --> 00:24:39.600
and chat with people and hear their stories.

513
00:24:39.600 --> 00:24:40.433
That's great.

514
00:24:40.433 --> 00:24:43.170
And how about for that one-on-one connection?

515
00:24:43.170 --> 00:24:47.340
How do people get involved with the peer-to-peer program?

516
00:24:47.340 --> 00:24:48.540
Yeah, it's a program.

517
00:24:48.540 --> 00:24:51.390
I mean, so encouraging to hear about some of the connections

518
00:24:51.390 --> 00:24:52.860
that folks are making with one another

519
00:24:52.860 --> 00:24:54.930
and the support that they're being able to offer each other.

520
00:24:54.930 --> 00:24:56.670
And if you ever feel like you, you know,

521
00:24:56.670 --> 00:24:59.190
would benefit from connecting with somebody else

522
00:24:59.190 --> 00:25:01.080
who is going through something similar,

523
00:25:01.080 --> 00:25:03.450
we're happy to see if we can figure that out with you.

524
00:25:03.450 --> 00:25:06.494
Again, the easiest thing to do is just call our 800 number.

525
00:25:06.494 --> 00:25:09.840
Again, it's 1-800-323-4238.

526
00:25:09.840 --> 00:25:11.880
The folks at our support center, you know,

527
00:25:11.880 --> 00:25:13.200
they'll want to get to know you a little bit

528
00:25:13.200 --> 00:25:15.030
and so they'll just ask you a few questions,

529
00:25:15.030 --> 00:25:16.800
maybe about your eye condition

530
00:25:16.800 --> 00:25:18.780
and maybe hobbies, interests, things like that.

531
00:25:18.780 --> 00:25:21.030
And then we'll do our best to try and connect you

532
00:25:21.030 --> 00:25:23.250
with somebody who has some similarities

533
00:25:23.250 --> 00:25:25.470
and then we'll introduce you to one another.

534
00:25:25.470 --> 00:25:26.303
Awesome.

535
00:25:26.303 --> 00:25:27.240
Well, thanks, Marc.

536
00:25:27.240 --> 00:25:29.340
It's been a lot of fun just listening

537
00:25:29.340 --> 00:25:33.450
to a few stories together and I always feel

538
00:25:33.450 --> 00:25:36.750
at the end of each one just how powerful it is.

539
00:25:36.750 --> 00:25:40.290
It's sort of like a rollercoaster where it goes down,

540
00:25:40.290 --> 00:25:42.510
oh, it's going back up.

541
00:25:42.510 --> 00:25:44.400
Yes, that's exactly right. (laughs)

542
00:25:44.400 --> 00:25:45.570
No, thanks for inviting me, Ricky.

543
00:25:45.570 --> 00:25:46.500
I do appreciate it.

544
00:25:46.500 --> 00:25:48.690
I so enjoy listening to these as well.

545
00:25:48.690 --> 00:25:49.523
It's just, it reminds me that

546
00:25:49.523 --> 00:25:51.330
there is a lot of hope out there, right?

547
00:25:51.330 --> 00:25:53.430
And there are others who understand

548
00:25:53.430 --> 00:25:55.710
and are willing to be there to help.

549
00:25:55.710 --> 00:25:57.750
Thanks so much, Marc, for stopping by.

550
00:25:57.750 --> 00:26:00.210
And of course, thank you all for listening.

551
00:26:00.210 --> 00:26:03.120
We're just about done, but I couldn't resist.

552
00:26:03.120 --> 00:26:07.860
We put together one last clip of clips, if you will,

553
00:26:07.860 --> 00:26:11.370
and it's just a couple of people expressing

554
00:26:11.370 --> 00:26:13.687
really how they felt when they discovered

555
00:26:13.687 --> 00:26:14.940
"Insights and Sound Bites"

556
00:26:14.940 --> 00:26:17.730
or decided to share their own story.

557
00:26:17.730 --> 00:26:21.360
So if you're still on the fence, I think this last set

558
00:26:21.360 --> 00:26:24.330
of clips is going to really encourage you

559
00:26:24.330 --> 00:26:27.663
to check out the podcast and hopefully share your own story.

560
00:26:29.130 --> 00:26:31.087
One of the things was, I was listening to

561
00:26:31.087 --> 00:26:34.230
"Insights and Sound Bites" where the lady,

562
00:26:34.230 --> 00:26:36.660
she just turned everything around

563
00:26:36.660 --> 00:26:39.240
and that's what I am doing.

564
00:26:39.240 --> 00:26:41.100
I think it's a path.

565
00:26:41.100 --> 00:26:42.970
I believe it's a path we go on

566
00:26:43.890 --> 00:26:47.100
but it's in a different direction depending on

567
00:26:47.100 --> 00:26:50.973
what you're looking for, for everyone with vision loss.

568
00:26:51.810 --> 00:26:54.840
And I have reached out and got help,

569
00:26:54.840 --> 00:26:56.877
but I love the "Insights and Sound Bites"

570
00:26:56.877 --> 00:26:59.673
and I listen to as many of them as I can.

571
00:27:01.080 --> 00:27:03.990
Hadley has really, really helped me

572
00:27:03.990 --> 00:27:07.770
kind of feel like I have a community of some sort

573
00:27:07.770 --> 00:27:10.830
where I just listen to all of everybody's stories

574
00:27:10.830 --> 00:27:15.120
and this is absolutely wonderful.

575
00:27:15.120 --> 00:27:17.460
And I want to thank you all from the bottom of my heart

576
00:27:17.460 --> 00:27:20.460
for even deciding to do this

577
00:27:20.460 --> 00:27:24.603
because this is something that I thoroughly enjoy.

578
00:27:25.680 --> 00:27:28.620
This year, I've given up so much.

579
00:27:28.620 --> 00:27:32.220
Driving the car, sold the car, gave up my business,

580
00:27:32.220 --> 00:27:37.220
my work of 50 years, and everything changed.

581
00:27:37.650 --> 00:27:41.310
If I could help one person with my story,

582
00:27:41.310 --> 00:27:44.340
I've achieved a great deal moving on

583
00:27:44.340 --> 00:27:48.150
to the next phase of my life with low vision.

584
00:27:48.150 --> 00:27:52.530
It just made me happy because I knew

585
00:27:52.530 --> 00:27:53.850
that I could help somebody.

586
00:27:53.850 --> 00:27:57.870
And if I helped one person through Hadley,

587
00:27:57.870 --> 00:27:59.493
I achieved a great deal.

588
00:28:01.375 --> 00:28:02.850
(cheerful music)

589
00:28:02.850 --> 00:28:04.560
Got something to say?

590
00:28:04.560 --> 00:28:08.010
Share your thoughts about this episode of "Hadley Presents,"

591
00:28:08.010 --> 00:28:10.590
or make suggestions for future episodes.

592
00:28:10.590 --> 00:28:12.300
We'd love to hear from you.

593
00:28:12.300 --> 00:28:17.280
Send us an email at podcast@hadleyhelps.org.

594
00:28:17.280 --> 00:28:22.280
That's P-O-D-C-A-S-T@hadleyhelps.O-R-G.

595
00:28:23.790 --> 00:28:28.530
Or leave us a message at 847-784-2870.

596
00:28:30.750 --> 00:28:31.833
Thanks for listening.

