Have you listened to Hadley's community-generated audio podcast yet? In this episode, Ricky and Marc Arneson, Hadley's Director of Community, share a few stories from Insights & Sound Bites and discuss how to contribute your own story. Insights & Sound Bites | Hadley
Hadley
Listen, Connect, and Share: Insights & Sound Bites
Presented by Ricky Enger
Ricky Enger: Welcome to Hadley Presents. I'm your host, Ricky Enger, inviting you to sit back, relax, and enjoy a conversation with the experts. In this episode, Hadley's director of community, Marc Arneson, joins us as Hadley members share insights from their journeys through vision loss. Welcome to the show, Marc.
Marc Arneson: Thanks, Ricky. So fun to be here.
Ricky Enger: It's really good to have you. And you've been here before.
Marc Arneson: I have.
Ricky Enger: And those times I'm like, okay, you get an intro, but you got to hurry it up so we can move on to the next guest. But today, what we're here for is actually to talk about community and just building that connectedness with each other and sharing things and learning from one another. And that is what you facilitate. So, this time you get a slightly longer intro to tell us about what you do at Hadley.
Marc Arneson: Oh, wonderful. Well, slightly longer? Ricky, I love my job and there's so many different pieces to it that I love doing. Probably the best part, I think about my job is being able to connect with folks. I get to spend a lot of time on the phone getting to know people. I join different support groups and attend different conferences to share about Hadley. And I just get to hear stories and things that folks are doing, managing their vision loss and the way that they're facing their vision loss and things like that. It's really a cool piece of my job is just getting to know people.
Ricky Enger: That’s awesome! And it is those stories and just getting to know people and hearing those small but powerful pieces of people’s journey that we are here for today. So, Hadley has another podcast called Insights and Sound Bites. And what we are going to do is, we have chosen a few, really short but just incredibly impactful and relatable episodes of that podcast. And we’re just going to take a quick listen and then chat a little bit about what we heard and kind of share our reactions. So yeah, let’s jump right into that. We’re going to start with Leah Moore.
Leah Moore: My name is Leah Moore and I live in Omaha Nebraska. Just a little over a year ago, I was diagnosed with Vitelliform Macular Dystrophy, late onset. At the time, I just figured, "Doctors have been wrong before. They've been wrong again. I'm not worried about it," and I just blew it off. And after about four months, everything started looking like it was crumpled up paper. If you had paper, somebody crumpled it up and then tried to flatten it out, have all the crinkles in it.
And at that time, I just thought, "Well, maybe I should probably have this in my medical record." I called and got the information. And when the doctor diagnosed me, she said, "Within two years, you will not be able to drive. You will not be able to read and you'll not be able to recognize anyone's faces." I felt like the doctor just threw me to the wolves. "You're going to go blind. Oh, by the way, make an appointment to see me in a year."
My biggest issue was just accepting it, knowing this is really going to happen because I was in denial for so long and trying to make excuses for everything. Once it hit me, we were on our way to the Grand Canyon to see before I couldn't see. And that's when reality hit me. It seems like all my life, I've heard people say, "You're not alone. You're not alone." For everything they say, "You're not alone."
And it just meant nothing to me until I was able to actually hear other people who really were going through the same things, or they've been through what I'm going through now. And they'll say, "I remember that time. And you're going to get through it just like I did." And it finally clicked, I really am not alone.
Ricky Enger: Wow. I love that. And she's so right. I mean, I don't know if you've experienced this before, Marc, but just that feeling of people are always telling you, "You don't have to do this by yourself." Whatever it is, it doesn't have to have anything to do with vision loss, just that people saying, "You are not the only one." And it never really does resonate until you're going through something where it gets proven to you. Right?
Marc Arneson: Absolutely, I can still relate to what she's saying there because it's true. You can hear people share, "You're not alone in this." And it really doesn't mean it anything until you find yourself in that place where you truly feel alone. And then what a difference it can make to realize you're not, right? I was thinking how it just becomes background noise or just not so useful noise when people are saying that.
Ricky Enger: Yeah, it feels like platitudes, right? Oh, sure.
Marc Arneson: Yeah.
Ricky Enger: Of course I'm not alone. Unfortunately, what was so relatable that we hear all the time is the doctor saying, "Oh, yep, you're going to go blind. Well, bye-bye. See you in a year." That is what must it feel like to be given that news and sent on your merry way?
Marc Arneson: That's exactly where I started tensing up, Ricky. I was like, can you imagine the weight of that conversation with her doctor? And then, I think she said, "It felt like I was thrown to the wolves. Where do I go from here? What do I do now?" And you're absolutely right from folks that I talk to, unfortunately, it seems to keep coming up way too often, those conversations like that with their doctors.
Ricky Enger: Well, thank you so much, Leah, for being willing to share that piece of your story with us. Clearly it resonates. Next up, let's hear from Ed McDaniel.
Ed McDaniel: My name is Ed McDaniel and I live in the foothills of North Carolina. I was diagnosed with retinitis pigmentosa when I was 28 years old. My older brother had already been diagnosed, so I knew it was a possibility that I would also have the eye condition. In addition to RP, I also have hearing loss. I was born with hearing loss. That really hasn't been so difficult for me. When I started losing my vision, that had a bigger impact on me because I had normal vision at one point.
I was still searching for some hope, and one of the ways I was doing that was finding out more information about treatment research, and whether that was ever going to be an option for me. I attended this conference in Florida. During the day they had all these presentations about research in treatment and all these different kinds of things. But in the evenings, they had the sessions where we could meet other people with RP, and that was really where I started to find some hope.
It wasn't really in the research, which was the main topic of the conference. But it was in the evenings where I met other people, and I met people who were all different ages, all different stages of vision loss. And I was able to see that they were living very productive and full lives. I came away from that conference feeling a lot more hopeful, where I was really have been struggling before that.
30 years later and there's still no treatment for RP. I'm glad there is research going on, and I think there could at some point be some treatment. But if I had been focusing on that for the past 30 years, I wouldn't be where I'm today by learning to live with my vision loss and not just putting all that hope into a cure for my vision loss.
Ricky Enger: The ending of that story is my very favorite part. And it resonates really strongly with me in that, if you are concentrating on one thing, you may be actually missing a piece of what's going on that could have a dramatic effect on who you become. If you're putting all your energy into when will there be a cure, if you're living for that, how many moments are passing you by that you might've missed?
Marc Arneson: Yeah, I'm learning to live with it. That's such a powerful statement, isn't it?
Ricky Enger: Yeah.
Marc Arneson: I think that's what you're talking about. Yeah. No, I think you're absolutely right, Ed is still hopeful. There's research going on and there's going to be a treatment, but I'm learning to live with this now. That's such a cool thing.
Ricky Enger: Yeah. And he's paying that forward in a way. He's doing his own support group, so meeting people where they are now. Because I think he recognizes the importance, hearing the right thing at the right time, and seeing other people who are maybe in different places in their journey than you are. And having that just be a beacon of hope for you.
Marc Arneson: Yeahm, Ed is a retired psychologist, and he's really dedicating his talents to trying to help as many people as he can.
The other thing that I think is so cool about this episode though, is the power of the example that other people can have. Ed is like, "Hey, there's people out there that have figured this thing out so it is possible. If they can do it, I can do it too. But there is a lot of, I mean, that can be very hopeful when you see, wow, if it's somebody else can do it, then I can do this too. I love that word hope. And I think that's what Ed talked about.
I think, Ricky, we were talking about themes that come up pretty frequently. And I think with Leah and Ed, we're hearing this theme of the importance of relationships and connection with others. I love how Ed talked about that.
Ricky Enger: Yeah, me too. Thank you so much, Ed. All right. Next up, let's hear from Angela.
Angela Delgado: Hello, my name is Angela Delgado. I live in New York City. I worked in a hospital for a long time. And I've always on the computer a lot. And I noticed that I started to see floaters in my eyes, and overall I just realized that my side view was going.
And when I went to the doctor, they told me that I have symptoms of glaucoma, and I'm like, "Glaucoma? What is that?" I've heard of it, but I just didn't know anybody that had that. They said, "Eventually you're going to wind up losing your vision more and more over time." And they said that there's no cure for glaucoma. And I'm like, "What do you mean there's no cure? You can't fix this? I went this fixed now." I started to lose most of the vision in the right eye. Now I'm using the left eye so I'm off balance when I'm walking because I have no peripheral.
They told me, "Oh, well, you should sign up for Commission for the Blind." I said, "Commission for the Blind?" I said, "What are you saying? I'm not like those people. My situation is different." They gave me the cane. I had the mobility training, the rehab, and they came out to where I live. I can't legally drive anymore. They declared me legally blind and visually impaired.
I had the cane inside my rain boots in the closet. It's like, "Well, I still got a little bit of vision left, so I'm going to use what I got. I don't want people to know my business." I said, "Because it's my secret." The secret was killing me. The secret was putting me in dangerous situations. I fall so many times, I bump my head so many times. I was taking a train and buses and people coming left, right, all different directions in the city. And I was like, " Oh, excuse me." They said, "Watch out, lady." They says, "What's wrong with you?"
My daughter came by to see me. She said, "Mommy, why you don't just take your cane with you?" And when she said that, it was a light bulb went off in my head. And here I am. It's not like I don't have a cane. We were going to the mall, and I remember the last time we went to the mall, I ran into a pole and I had a big old knot on my head. I almost split my head open. And I was afraid of that, but I didn't say anything. I just wanted to make them happy.
I have a brand new cane just in the closet in my rain boots. And I haven't even been wearing the rain boots because the cane was in it, so I felt like it was contaminated with the cane. She said, "This would help you so much." And all I could do was, and then I started crying. I started crying. I'm crying now, but I started crying because it made me realize that the only person that was embarrassed of my vision loss was me.
And I didn't want to burden nobody else. And they was more worried about me not using the cane. And I didn't know that. And I thought that they didn't want to be around me. Or when they was around me, I wanted to be like them. I wanted to go and act like I could still see as good. But when we went to the mall, I had the cane out and it just fit me. The cane was moving without me, put it that way. It was guiding me without my permission, if that makes any sense. Everything just happened so naturally, that was the best thing I ever did.
Ricky Enger: Wow. Talk about a roller coaster, right?
Marc Arneson: Right. I don't know what... Yeah, these episodes, I'm like, I get tensed up. And then by the end of it though, I'm smiling at each one.
Ricky Enger: Yeah, it feels so good because it's just that moment of catharsis. It's watching someone go from this place of just feeling so lost in a way. And in Angela's case, feeling shame. That's the thing that we've talked about before on Hadley Presents is that feeling of shame in relation to your vision loss. And then, there's the whole friends and family aspect of it. What are they going to think? And I think my favorite line was, "Blind? I'm not like those people." We do hear that.
Marc Arneson: Right? Yes. Yeah. Actually, I had a chance to sit with Angela over the phone. We recorded this together. And the thing that I think is so cool about Angela, is she's just, she's so honest and she's just so real. And you can hear that in her voice. It just really comes across. I just, I was reminded of our conversation together when I was listening to this again. But yeah, again, these common themes that we keep hearing. And I was thinking the stigma that she carries around about with the white cane, that was powerful too.
Ricky Enger: Oh, yeah.
Marc Arneson: With the rain boots are contaminated with the cane.
Ricky Enger: Right, it's contaminated.
Marc Arneson: But I imagine that's pretty common too, don't you think, Ricky?
Ricky Enger: Oh, for sure. We've talked about this in a couple of our episodes on exploring the white cane. And people have shared that, even professionals. We had Dorrie Rush who is a professional in the blindness field, share about her journey with the cane. And it was very much that. I don't want to admit that I need this and people are going to look at me in a different way when I have it. And then ultimately when you start using it, it's like, maybe I was thinking way more about this than other people were. And hey, I'm not bumping my head anymore.
Marc Arneson: Yeah. What did she say? I think she shared that she still wanted to act like she could see. And you're right. But her family members, and what a revelation for her, right? When her daughters, they wanted her to be safe. That was what was important to them, regardless of the cane or the contaminated boots, it was just like they wanted her to be safe. Which I think that's really a cool revelation that she came to as well.
Ricky Enger: Yeah, definitely.
Marc Arneson: I love that though. The cane was moving without me. Is that how she said it?
Ricky Enger: Yeah.
Marc Arneson: I think it was guiding her.
Ricky Enger: Yeah, I love that. It became a thing that was just natural for her, whereas I think she expected to struggle way more with it. And suddenly it's, "Hey, I'm moving through the world again. I'm doing my thing."
Marc Arneson: "And I'm doing it safely now." Yeah.
Ricky Enger: Yeah, yeah. Thank you, Angela. Such a powerful story. We appreciate it. And last up, let's hear from Bill.
Bill Massey: Hi, my name is Bill Massey and I am calling from Raleigh, North Carolina. In 2008 at the conclusion of a routine I exam for an eyeglass prescription, my optometrist suggested that I get a field of vision check to see if I had a glaucoma, but he was so complacent in his suggestion that I didn't take it seriously and ignored it.
That was my bad because two years later, in 2010 when I was back for another eyeglass prescription refill, he asked why I had not had the field of vision check, and then insisted that I get one. And gave me the contact information for the Duke Eye Center here in North Carolina.
Well, about a month later, I went in for my field of vision check, and it was determined that I already had a fairly advanced case of glaucoma. And I was prescribed a regimen of three different eye drops twice a day in each eye. But despite the eye drop regimen and several procedures to install in my eye what my doctor called the bleb. My vision continued to deteriorate until 2016 when I had to surrender my driver's license to DMV and my car keys to my wife. And so, to say that that was disappointing to me would be an understatement.
But a couple of weeks after that, I was back at Duke Eye Center for a routine eye pressure check. And I was sitting in the always crowded waiting room. And I was so wrapped up in my grievance about having lost my driving privileges and thus my independence, I didn't even notice this elderly snow-haired gentleman who plopped down in the chair beside me. And he said, "Good morning." And so I returned his greeting. And we struck up a conversation that was pretty much dominated by me lamenting my woes about having lost my driving privileges.
And he indulged me until I stopped to take a breath. And then he said in his soft southern drawl, "Well, I suspect you can't drive no more, but I suspect you can still walk." I didn't say anything. He went on and he said, "And I expect you can't see no more, but I suspect you can still hear." And so while I was formulating some kind of response to point out what I thought was his misplaced optimism, the nurse stepped around the corner and shouted out, "Mr. Webb." And without saying a word, the gentleman stood and shuffled off down the corridor with his walker and the nurse guiding him by his elbow.
Now, I had never seen Mr. Webb in that waiting room in the dozens of times I had been there previously. And I have not seen Mr. Webb in that waiting room in the dozens of times I've been there since. But I have concluded that that is because it's not often that we encounter an angel. And I'm convinced that that's who he was, because since that day, I have focused on my future and not my past.
Ricky Enger: Captivating storyteller. Right?
Marc Arneson: Oh my goodness. I feel like I could sit and listen to Bill all day.
Ricky Enger: Yes.
Marc Arneson: And again, okay, so true to form, Ricky, I find myself relating to Bill as well. That line, it's like, what'd he say? "Formulating a response to point out his misplaced optimism."
Ricky Enger: Yeah, very much so. We always want to tell people, "No, I'm right in my unhappiness. Don't try and tell me otherwise."
Marc Arneson: Yeah. No, but honestly, when I listen to Bill, and I've heard this episode before, but I think every time I listen to it, I get chills a little bit. And I think about this Mr. Webb and how he was able to help Bill look at the world from a different perspective. And that can be such a wonderful gift sometimes.
Ricky Enger: Yeah. And so much of it is about hearing the right thing at the right time. And you never know. Maybe you are the person who has that right thing to say to somebody else, but you're like, "Well, I'm not a born storyteller."
And so, if people are listening to this and thinking, "I actually do have something I want to share, but I feel self-conscious about it. I don't think I'm going to be able to come up with this perfectly crafted thing like I've heard on this episode." And so the cool thing is you don't have to make it a perfectly crafted thing, right?
Marc Arneson: Yeah. No, and I think that's part of why they're so relatable. And don't get me wrong, I mean, as we were joking, the minute the record button hits, I start freaking out and I get all nervous. And so I get it. And you always want to be perfect and say the perfect thing. But I think part of the reason I love these Insights & Soundbites is because they're not always perfect, but they're honest, they're real and I think that's what's important, right? It’s that you can just, people are just sharing their stories. And you're right. That's such a good point. You never know who it's going to connect with and make this huge difference like Mr. Webb did for Bill.
Ricky Enger: All of these stories have come, as I mentioned at the beginning of the episode, from Hadley's other podcast, which is called Insights & Soundbites. And it's where people can do just what we've heard here. They can share their stories with us, and then we take those and maybe do a couple of tweaks here and there. Or maybe you call and your dog is barking and you're like, "Oh, gosh, that didn't quite work. I guess I'll never have my wisdom shared with the world." But that isn't necessarily true.
I feel like we should actually go through that process. If somebody is thinking, "I do have something to share. I have a point that I think people will find relatable or it's something I wish someone had told me in the beginning of my journey." What is the process then of sharing something for Insights & Soundbites?
Marc Arneson: Well, there's lots of options, actually. There's a phone number that you can call and you can just leave a voice message. It's 847-512-4867. Call that number. You can leave a voice message, and sometimes we're just taking those voice messages and using them as episodes.
Also, pretty cool thing you can do right from our website. If you're online, all of our Insights & Soundbites episodes are right on our website. And on that page, there's a button that you can select and it says, "Submit your insights." And so once you select it, there's going to be another window that pops up and there's a button that you can select that says, "Record". And you select that, start talking, and then stop recording. And then those go directly to us, and we can get your message that way too. That's a neat way that you can do it.
But honestly, Ricky, you can also just call our 800 number. You'll get the help desk team, and you can just let them know that you want to share something on our Insights & Soundbites. And they'll pass you on to some folks here who will get back to you as soon as they can and just spend some time on the phone recording your story.
I get the privilege of being able to call people and sit down with them and hear their story over the phone. And then we're using a lot of those calls as some of our episodes as well.
Ricky Enger: That's great. Which takes some of the pressure off. If you don't get your message recorded exactly the right way that first time, there's a chance to just talk it through with someone. And we can pull out those parts that you're like, "These are the important bits. Let's share that." Then that's a way to do it, right?
Marc Arneson: Yeah, no, that's exactly right. And it's a nice way to do it, just getting on the phone and having a conversation.
Ricky Enger: Well, thank you, Marc, for sharing that process. And we really are so grateful to all of you who have shared with us thus far. And we hope that if you're listening now and you have something to share, that you will do that. If you want to catch the Insights & Soundbites episodes every couple of weeks, or if you want that information on how to submit one for yourself, those things are in our show notes. Or as Marc said, you can certainly call our 800 number. Is there anything else that you want to leave people with? This really has been a lot of fun and certainly a roller coaster. We go from laughter to tears and back again. Right?
Marc Arneson: I know. No, it's so true. But Ricky, again, just to restate your point that you made, it's you never know who's going to connect to your story. And the feedback that we're getting from folks who are listening to the Insights & Soundbites, like I said there, there's folks that are going back and listening to them over and over again because they're finding so much hope in them, and they're really connecting to the stories, and it's helping them feel like they're not alone. And so, sharing your story could give that kind of hope to somebody else as well.
Ricky Enger: Yes. Thank you so much, Marc, for joining us. And again, thank you for those of you who have shared your insights with us.
Marc Arneson: Thanks, Ricky.
Ricky Enger: Got something to say? Share your thoughts about this episode of Hadley Presents or make suggestions for future episodes. We'd love to hear from you. Send us an email at [email protected]. That's [email protected], or leave us a message at 847-784-2870. Thanks for listening.
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Learn how CVS pharmacy customers throughout the US can access a free service that reads aloud prescription medication information.
Join us as we chat with author Hannah Fairbairn about the tips and tricks she has learned to take some of the stress out of holiday get-togethers, no matter your vision.
We're joined by the creator of The Blind Life YouTube channel, Sam Seavey. Sam shares his personal journey with vision loss and advice he has for people who are newer to vision loss.
Whether you like to read for enjoyment or need to check your mail, reading is an essential part of your day. We're sharing tips and tricks for how to continue reading, the best low-tech and high-tech gadgets, and the benefits of learning braille.
Chief Innovation Officer Doug Walker chats with us about the launch of Hadley's newest podcast, Insights & Sound Bites. This new podcast will offer short stories shared by listeners. By tapping into the power of our community, we hope to share ideas, discoveries, and moments of inspiration along the journey through vision loss.
Jim Hoxie and Joanna Jones join us to discuss their children’s book, "Grandpa's White Cane." Jim shares how vision loss shaped his life and how he and Joanna, a retired teacher, began instructing children about the importance of white cane awareness and the do's and don'ts for helping people with visual impairment.
Blogger and social worker Jeff Flodin talks about his personal journey with vision loss and how his passion for helping people led him to blog about his experiences.
Hadley has partnered with the National Eye Institute (NEI) to offer a Spanish-language version of our popular cooking workshop series. Devina Fan, director of the National Eye Health Education Program at NEI, joins the podcast to talk more about this new initiative, NEI’s expanding Spanish content, and the importance of connecting Hispanic and Latino communities to important vision resources.
A change in your vision may make some parts of your job more challenging. But with a bit of help and some new skills, you may be able to stay in your job. Hadley Chief Program Officer Ed Haines and Learning Expert Steve Kelley join the podcast to talk about our new Working with Vision Loss workshops and to share tips for where to find support and how to ask for what you need.
Certified accessible travel advocate Melvin Reynolds joins the podcast to share tips for getting the most out of traveling, no matter your level of vision. Melvin gives advice on what to research ahead of a trip, considerations for traveling with a guide dog, and how a certified accessible travel advocate can help.
Karen and Dan Leonetti share how vision loss has changed their relationship and the advice they have for other couples.
Rabbi Lenny Sarko joins us to talk about how his vision loss journey led him to create a first-of-its-kind braille Sefer Torah that people around the country can access.
Actor and artist Bruce Horak talks about his personal journey with vision loss, how he got interested in painting, and his role in the new television series Star Trek: Strange New Worlds.
CEO of Eschenbach Optik of America Ken Bradley joins the podcast to discuss how Eschenbach has adapted through the pandemic to help people with visual impairment access low vision devices remotely. Through their "Telelowvision" program, you can try out magnification devices from the comfort of your home to find what works best for you before you buy.
Scottish radio broadcaster and podcaster Steven Scott loves finding and talking about tech stuff. He's especially fond of apps and gadgets that make life easier for him and others with vision loss.
NYT Columnist Frank Bruni returns to the podcast to talk about his new book. Frank describes his personal experiences with vision loss and how, with time, his perspective has grown.
IT professional and stand-up comedian Todd Blenkhorn talks about his personal journey with vision loss and how his passion for stand-up helped him find and share the humor in daily interactions.
In this episode, we're sharing highlights from previous interviews with a glaucoma specialist, retina specialist, and a low vision doctor. Listen in to learn more about common eye conditions, treatments, and what to expect at these specialist appointments.
Master Gardener Sue Brasel and Hadley's Chief Program Officer and gardener Ed Haines join us for a chat about gardening, no matter your level of vision or gardening experience. They share tips for how to get started, common challenges, and the many benefits of gardening.
We're joined by Carol Mackey, an avid discussion group participant, and co-host Debbie Worman to chat about what Hadley groups are, how to join, and what you can get out of them. With 10 groups on a variety of topics, there's something for everyone. Listen in or chime in – it’s up to you.
Bold Blind Beauty blogger Stephanae McCoy joins us for a chat on beauty, style and confidence. Stephanae talks about how vision loss shaped her life, and then shares some of her favorite fashion and beauty tips.
Hadley staff share their favorite kitchen gadgets and tips. Whether you're an experienced home chef or a total novice, you're bound to pick up a few ideas that fit your vision needs and make your time in the kitchen more productive (and fun).
We sat down with Kim Walker, co-director of research and development at Hadley, and Mark Andrews, one of the Hadley advisors who reviewed our exciting new approach for adults with vision loss to learn braille. From labeling items in your home to identifying buttons on an elevator, braille can be a wonderful tool for everyday use.
New York Times Best-Selling Author, Gretchen Rubin, chats about her research on how tapping into different senses can enrich our lives and connect us to each other in surprising ways.
Twin sisters Jenelle and Joy join the podcast to share their personal experiences with vision loss and adjusting to it emotionally. While they look identical, their perspectives and journeys differ, highlighting their mission to show that "there is no right way to go blind."
Hadley learner Sharon Noseworthy shares tips and tricks for hosting get-togethers of any type or size, no matter your vision. Sharon has always loved the role of hostess and has learned to adjust her approach now that her own vision has declined.
We're joined by Teepa Snow, occupational therapist and founder of Positive Approach to Care, to learn more about the challenges of having both vision loss and dementia. Teepa addresses common misconceptions about dementia and shares practical tips for supporting someone with both conditions.
We sat down with several Hadley staff members and asked them about their favorite tech tips, apps, and gadgets. Whether you consider yourself a tech expert or novice, the group recommends a variety of high-tech and low-tech options that fit your comfort level and interests.
Judge David Tatel has served on the second most powerful court in the country since 1994. He also happens to be blind. Judge Tatel joins us to share his story on building a law career and family while dealing with changing vision, the technology and resources he's found useful, and what made him consider getting a guide dog in recent years.
In honor of White Cane Safety Day today, we're joined by Hadley learner Larry Carlson and Orientation and Mobility Specialist Elijah Haines for a conversation about this important tool. Larry shares what made him decide to use a white cane, and Elijah shares tips for what to consider and how to adjust to using a white cane.
Supriya Raman, manager of the Disability and Multicultural branches of the TSA, shares tips on traveling among shifting COVID restrictions. Supriya covers what to expect at the airport and what resources are available for people with visual impairment.
Photographer Michael Nye chats with us about his latest art exhibit, "My Heart is Not Blind," a collection of photos and audio interviews of people with visual impairment. Through these stories, Michael provides a look into what he calls "our shared humanity and shared fragility," as well as common misunderstandings about blindness.
Champion blind golfer Chad NeSmith talks about how vision loss shaped his life, and how he shares his passion for golf with others with vision loss.
Doug Walker, Hadley co-director of R&D, and Ed Haines, Hadley Chief Program Officer, chat about the making of Hadley's "Adjusting to Vision Loss" workshop series. The series guides people through the emotional aspects of vision loss. Doug serves as the series' personal storyteller and narrator.
In this episode we chat with ophthalmologist Dr. Angela Elam from the University of Michigan. Dr. Elam addresses common questions and concerns, and shares her advice for returning to the eye doctor among shifting COVID restrictions.
Dorrie Rush, OE's Chief Content Officer, joins us for a chat about this wonderful online resource chock full of tips for living well with vision loss. You'll find great articles on using tech tools, tips for health and well-being, stories from others living with vision loss, a terrific podcast, and more.
Learn about a new service that’s just launched in 2020 called Accessible Pharmacy. Accessible packaging and labeling and personalized customer support all free of charge to the end consumer, and specifically designed for those with vision impairment.
Audio Describe the World! That’s the mantra of UniDescription: a free smartphone app that provides audio descriptions and navigation tips for US National Parks and other public places.
In this episode, we chat with low vision optometrist Dr. Mark Wilkinson from the University of Iowa. Dr. Wilkinson answers common questions and shares his advice for getting the most out of low vision optometry appointments.
Jan and Elgie Dow share how vision loss has changed their relationship and the advice they have for other couples.
Join Hadley advisor Eddie Becerra as he shares about losing his sight from diabetic retinopathy, and how he gained a new perspective on life.
Classically trained chef Regina Mitchell shares how vision loss shaped her life. Regina worked her way back into the kitchen and is now helping others cook with confidence, no matter their vision.
In this episode we sit down with the director of Well Connected, an organization that offers free, call-in groups for adults over 60 on a wide variety of interest areas: games, music, meditation and more.
Support groups can be a great way to connect with others who "get it." Listen in as as low vision support group leaders Lynndah Lahey and Judy Davis describe how their groups are run and what their members get out of them.
World-renowned artist John Bramblitt describes how vision loss has shaped his painting and his life.
In this episode, we chat with Dr. Tim Murray of the American Society of Retina Specialists. Dr. Murray treats eye diseases such as macular degeneration and diabetic retinopathy. He answers common questions and shares his insights into the future of treatments.
In this episode, we sit down with Dr. Jullia Rosdahl, a glaucoma specialist from the Duke Eye Center, and ask her some of the many questions we’ve heard about glaucoma, its risk factors, and how to treat the disease.
Hadley learning expert Jessica Smith shares her experience raising a puppy that may eventually become a guide dog. She covers what she’s learned and things to consider if you’d like to volunteer to help out a guide dog school.
October 15 is White Cane Safety Day, a day to recognize this important tool that empowers people with visual impairment to travel safely and independently. It also brings attention to the general public to be mindful of visually impaired neighbors, giving them additional consideration and right-of-way when needed. We sat down with Kellee Sanchez, an orientation and mobility specialist, to talk about the history of White Cane Safety Day, and how a white cane can help those with vision loss.
Be My Eyes is a free smartphone app that connects visually impaired users with sighted volunteers for help with visual tasks. We sat down with Will Butler from Be My Eyes to hear how the app started, tips for using it, and exciting new features that provide specialized assistance, including with Hadley.
Tracy Simon from Eye2Eye peer support program shares her story of vision loss, how her program works, and the benefits of connecting with and supporting each other.
Ophthalmologist Dr. Lori Provencher chats with us about how the coronavirus pandemic has changed doctor's visits. She shares tips for staying safe, questions to ask, and what to expect before, during and after your next office visit.
Mindfulness expert Tiffany Guske returns to the podcast to share tips and insights on how to cope with life's challenges, such as vision loss or an illness, building resilience and focusing on self-compassion instead of judgment.
Author of "When You Can't Believe Your Eyes," Hannah Fairbairn, chats with us about how to communicate in everyday situations when you can't rely on visual cues. Hear Hannah's own story about losing vision, her practical tips on adjusting to vision loss, and advice she has on regaining confidence in social situations.
In this episode, we continue the conversation on living during the COVID-19 pandemic with a visual impairment. Listen in as we share some experiences, tips, and strategies for coping during these difficult times.
The COVID-19 crisis has brought a wave of change and uncertainty to our everyday lives. Listen in as we share personal experiences, resources and some helpful tips...all from a blind or low vision perspective.
Assistive technology experts Ricky Enger and Steve Kelley review BlindShell, a mobile phone built for those with visual impairment. They discuss the basic features, how it differs from a traditional smartphone, and how to decide if it's right for you.
This week we sit down with Dan Roberts, author of "The First Year-Age-Related Macular Degeneration: An Essential Guide for the Newly Diagnosed" and founder of MDSupport website and support group. Hear Dan's own story about being diagnosed with macular degeneration and what prompted him to reach out to others facing similar circumstances.
Listen in as we explore the basics of using hand tools with a visual impairment. Gil Johnson, a visually impaired home repair expert, shares tips on everything from measuring, to leveling to hammering.
Elections are right around the corner. So we gathered a panel to talk about options for voting no matter your level of vision. Listen in as we explore everything you need to know, from registering to vote to the many ways you can cast your ballot.
Ricky sits down with Android Accessibility Product Manager Brian Kemler to discuss what is available on Android phones for those with visual impairment. From adjusting font size and color, or opting to listen with TalkBack instead, the commitment to making these powerful tools more useful to a wider audience is clear.
In this episode, we chat with Gil Johnson, an experienced home repair and woodworking enthusiast about things to consider when undertaking home repair with blindness or low vision.
Hadley's Debbie Good sits down to continue a conversation with author and visually impaired world traveler Dr. Wendy David. Together they explore a wide variety of helpful hints covering train, plane, and cruise travel as well as practical information on traveling internationally and navigating hotels.
In this episode, Ricky Enger chats with Joe Strechay, associate producer on the Apple TV+ series SEE. The show takes place in a future where, after a viral apocalypse, all humans are blind. Joe takes us behind the scenes of the show and his work to help build an inclusive set for the cast and crew, including those with low to no vision. From casting to costumes, scripting to scenery, hear how Joe helped create a science fiction world that strives to be authentic to life with vision loss.
Hadley's Debbie Good sits down with travel author Dr. Wendy David in this latest episode. In part one of this two-part interview, Debbie and Wendy discuss tips for traveling with confidence as a blind or low vision person, advice on picking destinations, considerations for traveling alone and in a group, and more!
Ricky Enger is joined by Hadley's Debbie Worman and mindfulness expert Tiffany Guske in this latest episode. Debbie and Tiffany talk about what mindfulness is and the specific benefits that mindfulness can offer for those living with vision loss. Tiffany then walks listeners through a short mindfulness exercise.
In this episode, Ricky Enger speaks with New York Times columnist Frank Bruni, who shares the story of his sudden vision loss from NAION. Bruni speaks candidly on his adjustment to the change, maintaining a realistic attitude towards his vision loss, and the failure of medical professionals to provide resources after diagnosis.
Listen in as we share practical tips on how to keep your handwriting readable. This resource-packed episode includes many useful techniques and solutions to common handwriting challenges. Hadley Learning Expert Jennifer Ottowitz chats with Sue Dalton, Certified Vision Rehabilitation Therapist.
In this episode, Hadley's Steve Kelley speaks with Kendra Farrow, from the National Research and Training Center on Blindness and Low Vision, located at Mississippi State. The episode serves as a guide for those new to vision rehabilitation, including determining who is eligible for services, key differences between the medical and social services models, and how to locate services in each state.
In this episode, Ricky Enger chats with Microsoft's Jeremy Curry, a Senior Program Manager with the Windows Accessibility team. New vision accessibility features are now available in Windows 10 for low vision and screen reader users.
In the inaugural episode of Hadley Presents, Ricky Enger and Jonathan Mosen of Aira chat about the ways in which a visual interpreter service, such as Aira, can be used to gain valuable visual information and enhance travel and leisure activities for blind and low vision users.