"I found my community"
This week we hear from Appreciate. She found that a Facebook group, The International Blind Cafe, gave her a source of comfort and encouragement.
Hadley
I found my community
Appreciate Wellspring: You're not the only person that's struggling.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Appreciate Wellspring: I am Appreciate Wellspring. I'm originally from Minneapolis, Minnesota. And I've just recently moved, I'm in Tennessee right now. I lost my vision in 2019. I had a migraine and the inflammation from the migraine closed the circulation or the blood flow in my brain. So, I've lost verbal use, I lost use of my left side, and of course, then my vision as well.
There's a group of friends on Facebook, it's called the International Blind Cafe, and this is a group of people that we all are in different stages of the spectrum of blindness.
But this group has been instrumental as well to healing and knowing that you're not the only person that's struggling with not wanting to be seen when you're eating, or the feeling when you use your white cane.
It's so eye opening to finally feel a part of a group, a community. Because at the very beginning when you're going through this alone.
And it's great to have this community of people that they're in my background and they're cheering me on, go, go, go.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
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Episode 46
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
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Episode 45
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.
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Episode 44
Judy has lived with progressive vision loss for many years. She's found a way that helps her cope and adjust.
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Episode 43
For years Bill hid his vision loss from others. He was self-conscious about it. Then, he decided to open up.
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Episode 42
For Cynthia, every story shared helps her on her own journey with vision loss.