"Makes me feel less isolated"
The week Jessica was diagnosed with an eye disease that would progressively impair her vision, she also found out she had cancer. A few things have helped her continue to feel strong and less isolated.
Hadley
Makes me feel less isolated
Jessica: Just hearing the experiences of other people, it makes me feel less isolated and that these experiences are not just mine, but they are pretty universal to the low vision community.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Jessica: Hey, my name is Jessica Simmel and I am from New York, New York. I was diagnosed with retinitis pigmentosa in December of 2016. The same week I found out that I had breast cancer. And now, eight years later, sitting at my window birding and listening to some of these podcasts and realized that maybe I did have something to share.
Because listening to these stories, these sound bites are so validating. I have about eight degrees of vision left, probably a little less by now. And, it's hard. As you all know, and something that has brought me comfort this year, that has allowed me to really keep going is adaptive sports.
I'm 51 years old. I had stopped doing anything athletic due to arthritis in my wrists, my knees, my hip. And then I learned about an adaptive climbing group that was about 45 minutes away from where I live. And when I was sighted, I absolutely loved climbing, but I hadn't done it, probably since 16 years ago.
And it's been six months that I have been doing adaptive rock climbing, and I can say that it's truly changed my life. It just made me feel strong in my own body. And I hadn't felt that in a really, really long time.
The other thing that has helped me is listening to stories from other people. Just hearing the experiences of other people, it makes me feel less isolated and that these experiences are not just mine, but they are pretty universal to the low vision community.
So I hope this help and thank you all for helping me with your stories. Thank you.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
-
Episode 82
When Elizabeth lost her vision in an auto accident, she went into survival mode. As she began to rebuild her life, she found certain connections and activities helped her focus less on her limitations and more on a renewed sense of purpose.
-
Episode 81
When Eddie lost a fair amount of vision, she was scared and didn’t know how she was going to cope. But she found a source of strength and inspiration.
-
Episode 80
As Kenneth lost most of his sight to glaucoma, he was feeling increasingly isolated and alone. Then he made a commitment, forcing himself to find ways to stay connected to the rest of the world.
-
Episode 79
When Carol Lee was diagnosed with age-related macular degeneration, she was angry and frustrated. Over time, resentment began to fade a bit and the shock wore off. Gradually, her perspective started to shift.
-
Episode 78
When Cliff unexpectedly lost a fair amount of his sight, he felt overwhelmed. But with time, he found a way forward.
-
Episode 77
Thomas is experiencing many challenges of late, including vision loss. He finds inspiration and hope knowing he's not alone.
-
Episode 76
Nikki has lost her vision due to a rare autoimmune disease. While she appreciates positive bits of advice and encouragement, she also stays grounded in the struggles she's facing and knows others do, too. She's feeling the loss.
-
Episode 75
When a favorite hobby became more difficult for Dianne due to glaucoma, she learned to tap into something else. It turned out to be the ideal thing.
-
Episode 74
Peter's sight slowly but steadily worsened over the course of several years. When he had to give up driving, his self-image took a hit. Working through his emotions has helped him cope and adjust.
-
Episode 73
Sherry's vision loss has been gradual yet relentless. Asking for help to do things she used to be able to do on her own is a challenge for her, as it is for many. But she's finding some new tools and new ways to do things.
-
Episode 72
Carolyn lost much of her vision after several glaucoma surgeries, leaving her feeling angry and discouraged. But a familiar childhood story inspired her to keep trying, even when tasks seemed impossible.
-
Episode 71
Learning he would never see again was heartbreaking for Shannon. Embracing what challenged him, Shannon discovered strength in the unfamiliar.