"That really changed my life"
Living with low vision meant Karen was constantly explaining to others what she can and can't see. Then she found a tool that has made a big difference.
Hadley
That really changed my life
Karen: The issues I have, I don’t always recognize people, especially if I don’t see them very often.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Karen: My name is Karen. I'm from New York City. I have low vision. I can read if I hold paper up to my nose or use magnifiers, but the issues I have, and I don't know if it's getting worse or I'm just becoming more aware of it, I don't always recognize people, especially if I don't see them very often.
But the thing that really has changed my life was during the pandemic, I somehow became involved with ACB, the American Council of the Blind, and also its affiliate, the Councils of Citizens with Low Vision International, CCLVI. And even more recently, I've become active with the Greater New York Council of the Blind.
It was mentioned to me that there's such a thing as an identity cane. Now, an identity cane is used to let people know you have a visual problem. It's thin, it folds up into my purse, whereas a mobility cane, it's bigger and it's meant for people to find their way.
And so, I think having the identity cane answers some questions for people regarding my behavior and my eyes. In most cases, people are friendly and respectful. They realize, "Okay," and they may even think I'm totally blind, but that's okay because it gets me what I need. But I find that it’s made a big difference.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
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Episode 46
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
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Episode 45
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.
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Episode 44
Judy has lived with progressive vision loss for many years. She's found a way that helps her cope and adjust.
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Episode 43
For years Bill hid his vision loss from others. He was self-conscious about it. Then, he decided to open up.
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Episode 42
For Cynthia, every story shared helps her on her own journey with vision loss.