Doug was filled with uncertainty after realizing that the vision he lost was unlikely to be restored. His anxiety grew as the silver bullet he hoped for never materialized. But he did find things that helped him manage and continue to live his life with purpose.
Hadley
“There’s no way around it, just a way through it”
Doug: I was truly going down the grief path. I was looking for the silver bullet. I was looking for something that would make this all go away. But there wasn't any silver bullet.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Doug: Hi, everybody. My name's Doug. I'm from Carmel, Indiana, which is a suburb of Indianapolis. So about two and a half years ago, I had what's called non-arthritic Anterior Ischemic Optic Neuritis in my right eye. So, my right eye started losing some sight and went to the ophthalmologist and got diagnosed. I mean there's nothing we can do.
And you're the result of a disruption of blood flow to your optic nerve and you got some damage there and you're going to have vision loss in that eye. And I did as a as it ran its course. But my left eye was still fine. And after some adjustment to depth perception, etc., I went on with my life as I always had.
Approximately two years later, in June of 2025, my left eye started down the same path. So now, instead of just having NAION as they call it now, I had subsequent bilateral NAION which is extremely rare from what I'm told. My vision loss journey really started just about six months ago. I was in a mental mess. It was really tough.
I, you know, I just was looking forward and trying to figure out how am I going to live my life. You know, my with just full of uncertainty, full of anxiety, depression. I didn't sleep very much, just kind of felt helpless, felt lack of purpose in life and all those things. I was truly going down the grief path.
And for me, that lasted about four months. And in that time, I was looking for the silver bullet. I was looking for something that was gonna make this all go away. And so, I did a lot of things that helped me. I ramped up my exercise regimen for sure, and that would take my mind off of my problems for a while.
I, you know, worked with a therapist a little bit and to get some help dealing with anxiety, depression, things work with my primary care doctor or to help with some sleep issues. But there wasn't any silver bullet. There were just things...as long as I was doing something to help keep my mind busy with something else that was good.
And if I was just sitting in the chair doing nothing, that was bad. And so there was one thing that I was told early on in my in that part of my journey. She’s actually an occupational therapist, who goes to our church and she told me, you're just proving that you're human. And now really stuck with me, and it forced me to think a lot deeper about what I'm going through at the time.
And, I knew that, well, this happens when you have a great life change or a great life loss, you know, your brain goes into this grief mode. And that's obviously, you what what's happening to me? And I have experienced that done, before in life, I've lived long enough to have some loss here and there.
But I knew that that's just what happens and what your brain does. It puts you through this tough love period and helps you to negotiate what you're going through. And I think prepares you to be able to survive and thrive much better in your new, life environment after you come out of your grief.
And so, I knew there was an end to it. And I knew that this is something that I'm not alone. Other people go through this too. And I just I knew there was an end and I knew there could be some silver linings in that end and some good things that come out of it. I just gotta plow through it step by step and move forward.
And I learned that, you know, there's no way around it. There's just a way through it, and there's only a way through it on your own two feet.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.
Judy has lived with progressive vision loss for many years. She's found a way that helps her cope and adjust.
For years Bill hid his vision loss from others. He was self-conscious about it. Then, he decided to open up.
For Cynthia, every story shared helps her on her own journey with vision loss.
Living with low vision meant Karen was constantly explaining to others what she can and can't see. Then she found a tool that has made a big difference.
Having to give up the car keys was traumatic for Eugenia. She worried about becoming isolated until she found a new way.
This week, hear how rediscovering a favorite activity helped Celia find balance as she adjusts to vision loss.
Denise can struggle with the slow but continuous loss of vision she's facing. But she's found a way to pick herself up on a bad day.