"You can't do this alone"
Sharon shares with us how she worked through the isolation and found people just like her to get the support she needed.
Insights and Sound Bites
You can’t do this alone
Sharon: One day I'll wake up and maybe I won't see as well. You know, every day was a different journey. It was a journey. Unless you’re with people who are experiencing the same thing, it's a very lonely thing.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Sharon: When you first get that diagnosis and have no symptoms, you don't really understand what the possibilities are. I'm relying on a doctor to tell me the possibilities or to direct me in a direction of what could this journey look like. And I never found that.
There's a linear process and I most likely will lose more vision along the way. And one day I'll wake up and maybe I won't see as well. You know, every day was a different journey. It was a journey. It's terrifying. Unless you’re with people who are experiencing the same thing and can give support, it's a very lonely thing.
I'm adjusting it, but I'm much more stable now than I have been ever. I'm less fearful about the future. I know the vision may deteriorate further, but I feel I have the skills now and the support now with all of the services, yours included, to navigate.
The most important thing is you need a support group. You cannot do this alone. You may need more than your family. You need people who are experiencing the same thing.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 54
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
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Episode 46
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
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Episode 45
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.
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Episode 44
Judy has lived with progressive vision loss for many years. She's found a way that helps her cope and adjust.
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Episode 43
For years Bill hid his vision loss from others. He was self-conscious about it. Then, he decided to open up.