"The gift that keeps on giving"
This week Dorrie shares how technology has made all the difference for her in living with vision loss.
Hadley
The Gift That Keeps on Giving
Presented by Douglas Walker
Douglas: Hello, and welcome to the Insights and Sound Bites podcast, where people facing vision loss share insights about what has helped them cope and adjust.
Douglas: My name is Douglas Walker. Today we’ll hear from Dorrie. Dorrie will share with us how just one small device can make a really big difference.
Dorrie Rush: My name is Dorrie Rush and I am from New York. I have Stargardt disease and have lived with progressive vision loss for more than 30 years.
There is one device that plays a major role in every single day in so many ways for me, and that is the smartphone. The smartphone of my choice is the iPhone.
From the beginning, I learned to use voiceover, the screen reader. So, everything on the screen is read to me, which takes a lot of the stress out of trying to decipher or magnify everything on such a small screen.
I also use Siri to the maximum of my ability, which is very helpful because obviously in many ways the voice assistant makes verbal commands, voice commands easier to accomplish.
I also, of course, use the clock. Very difficult finding out what time it is when you have difficulty seeing. I use reminders a great deal and just things that I need to remember at a certain time. And I also am an incessant list maker, so I have a lot of lists. I love checking the weather. It's always nice to know what's happening in the weather.
I use Seeing AI, the app from Microsoft to read signs, to read documents and to read product barcodes, which is helpful when you're shopping or when you are cooking dinner and right now, I'm using voice memos to record this.
It sounds like a lot, but I learned one app at a time very patiently and with a lot of help from Hadley's workshops, which are the best. So, I can't imagine functioning without a smartphone. It is the gift that keeps giving.
Douglas: Was there something that someone said to you or something that happened along the way that made all the difference in the world in helping you adjust to living with vision loss?
We‘d love to hear from you if you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail by calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected]. Again, my name is Douglas Walker. Take care and I’ll see you next time.
All Episodes
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Episode 56
When Emma lost her sight in just a few months, she struggled to cope. She felt alone, her insecurities grew, and self-esteem plummeted. With time, she came to a new understanding and that helped her tremendously.
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Episode 55
Dave calls his experience with vision loss a slow torture. In the face of this, however, he has found a sense of inspiration in explorers, history, and an activity you wouldn't typically connect with vision loss, sightseeing.
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Episode 54
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
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Episode 46
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
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Episode 45
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.