"It's more comfortable talking to others that understand"
When Terry lost more of her vision, it took time to come to terms with what was happening. Talking with others who understand what she's going through has made it easier to open up and find her way forward.
Hadley
“It’s more comfortable talking to others that understand”
Terry: I was kind of like embarrassed to say anything. I feel more comfortable when I'm talking about it with people that understand what I'm going through.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Terry: Hi, my name is Terry Bruce. Everyone calls me Shorty. I'm from San Antonio, Texas, and I have optic atrophy. At the end of 19, I had a stroke, so that affected my vision even more. In 2023, I had another stroke, and it's called a CVA.
And it affected my eyes tremendously. And now I'm coping and trying to deal with losing my vision. I have vision in one eye, my right eye, but not as much. And vision in my left eye is totally gone. I can only see sometimes like flashes of light.
And after the first one, I was kind of like embarrassed to say anything. I'm a very independent person. I'm used to taking care of everybody else. I used to be a CNA, I used to be a QMA nurse and a provider. So I'm used to doing for others.
After I came out of the rehab, they say, well, you're gonna need this, you're gonna need that, you're gonna need this. And everything they started telling me, I heard it, but it wasn't happening to me. It was somebody else. It was like an out-of-body experience. And they was like, did you understand? Did you understand?
And I was like, yeah, sure, but you're not talking to me. You're talking to somebody else and I'm just listening to it. So, I wasn't grasping it.
I thank Hadley so much and I'm so glad I found out about it because y'all are helping me talk to other people that either have the same issue that I have or similarity of issues that I have. And I feel more comfortable when I'm talking about it with people that understand what I'm going through.
I know it's a hard road that we're going down and that we're traveling, but if you believe in God or any higher being or whatever, just talk to them. If you have family or friends, Hadley or whatever, just remember that little engine that said, I think I can, I think I can. And one day, sooner or later, you will be able to say, I can, I can because after you lost your vision you can't expect to just jump up and run a marathon you got to take it step by step and day by day a little by little.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 88
When Pat was diagnosed with an inherited retinal disease, her doctor told her she wouldn't go completely blind, but her life would change forever. And while it's been a hard road, she's found some things along the way that help.
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Episode 87
Debbie has found a place near her that helps unleash her creative streak and her desire to give back to the community, a place where how much she can see doesn't matter.
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Episode 86
Doug was filled with uncertainty after realizing that the vision he lost was unlikely to be restored. His anxiety grew as the silver bullet he hoped for never materialized. But he did find things that helped him manage and continue to live his life with purpose.
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Episode 85
When Nancy's vision deteriorated to the point that it was challenging to navigate streets of a neighborhood she walked for decades, it was humbling. But a friend's comment surprised and inspired her. Her perspective started to shift.
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Episode 84
Macular degeneration was no stranger to Valerie, her mom had the condition. Early into her own diagnosis of AMD, treatments worked well and her vision remained stable. Over time, however, she noticed more significant changes, which became increasingly challenging both emotionally and physically. That's when she began to change her perspective, and that change made all the difference.
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Episode 83
Scott went to multiple specialists in search of a cure for his eye disease. He would often sit and just think about going blind. But one day a son's random comment took his mind off of everything and reconnected the family.
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Episode 82
When Elizabeth lost her vision in an auto accident, she went into survival mode. As she began to rebuild her life, she found certain connections and activities helped her focus less on her limitations and more on a renewed sense of purpose.
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Episode 81
When Eddie lost a fair amount of vision, she was scared and didn’t know how she was going to cope. But she found a source of strength and inspiration.
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Episode 80
As Kenneth lost most of his sight to glaucoma, he was feeling increasingly isolated and alone. Then he made a commitment, forcing himself to find ways to stay connected to the rest of the world.
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Episode 79
When Carol Lee was diagnosed with age-related macular degeneration, she was angry and frustrated. Over time, resentment began to fade a bit and the shock wore off. Gradually, her perspective started to shift.
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Episode 78
When Cliff unexpectedly lost a fair amount of his sight, he felt overwhelmed. But with time, he found a way forward.
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Episode 77
Thomas is experiencing many challenges of late, including vision loss. He finds inspiration and hope knowing he's not alone.
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