"It's more comfortable talking to others that understand"
When Terry lost more of her vision, it took time to come to terms with what was happening. Talking with others who understand what she's going through has made it easier to open up and find her way forward.
Hadley
“It’s more comfortable talking to others that understand”
Terry: I was kind of like embarrassed to say anything. I feel more comfortable when I'm talking about it with people that understand what I'm going through.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Terry: Hi, my name is Terry Bruce. Everyone calls me Shorty. I'm from San Antonio, Texas, and I have optic atrophy. At the end of 19, I had a stroke, so that affected my vision even more. In 2023, I had another stroke, and it's called a CVA.
And it affected my eyes tremendously. And now I'm coping and trying to deal with losing my vision. I have vision in one eye, my right eye, but not as much. And vision in my left eye is totally gone. I can only see sometimes like flashes of light.
And after the first one, I was kind of like embarrassed to say anything. I'm a very independent person. I'm used to taking care of everybody else. I used to be a CNA, I used to be a QMA nurse and a provider. So I'm used to doing for others.
After I came out of the rehab, they say, well, you're gonna need this, you're gonna need that, you're gonna need this. And everything they started telling me, I heard it, but it wasn't happening to me. It was somebody else. It was like an out-of-body experience. And they was like, did you understand? Did you understand?
And I was like, yeah, sure, but you're not talking to me. You're talking to somebody else and I'm just listening to it. So, I wasn't grasping it.
I thank Hadley so much and I'm so glad I found out about it because y'all are helping me talk to other people that either have the same issue that I have or similarity of issues that I have. And I feel more comfortable when I'm talking about it with people that understand what I'm going through.
I know it's a hard road that we're going down and that we're traveling, but if you believe in God or any higher being or whatever, just talk to them. If you have family or friends, Hadley or whatever, just remember that little engine that said, I think I can, I think I can. And one day, sooner or later, you will be able to say, I can, I can because after you lost your vision you can't expect to just jump up and run a marathon you got to take it step by step and day by day a little by little.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 76
Nikki has lost her vision due to a rare autoimmune disease. While she appreciates positive bits of advice and encouragement, she also stays grounded in the struggles she's facing and knows others do, too. She's feeling the loss.
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Episode 75
When a favorite hobby became more difficult for Dianne due to glaucoma, she learned to tap into something else. It turned out to be the ideal thing.
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Episode 74
Peter's sight slowly but steadily worsened over the course of several years. When he had to give up driving, his self-image took a hit. Working through his emotions has helped him cope and adjust.
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Episode 73
Sherry's vision loss has been gradual yet relentless. Asking for help to do things she used to be able to do on her own is a challenge for her, as it is for many. But she's finding some new tools and new ways to do things.
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Episode 72
Carolyn lost much of her vision after several glaucoma surgeries, leaving her feeling angry and discouraged. But a familiar childhood story inspired her to keep trying, even when tasks seemed impossible.
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Episode 71
Learning he would never see again was heartbreaking for Shannon. Embracing what challenged him, Shannon discovered strength in the unfamiliar.
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Episode 70
The week Jessica was diagnosed with an eye disease that would progressively impair her vision, she also found out she had cancer. A few things have helped her continue to feel strong and less isolated.
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Episode 69
Jack's vision has been declining for years. The hardest part for him is that it just keeps changing, so he needs to keep adapting. A routine Jack's wife put in place for the couple has helped him cope and adjust.
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Episode 68
Losing a fair amount of her vision brought with it a series of other losses for Dia. She began to feel depressed and very fearful. However, she gradually started giving herself pep talks and reconnecting with the things that bring her joy.
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Episode 67
Julia had always lived life on her own terms. So, when vision loss meant giving up her car keys, she used a white cane or her husband's arm to guide her steps, and kept going. Still, she noticed a change in how others treated her… until she made a decision she now calls, "the best thing I ever did."
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Episode 66
When the scenario Leighann had feared for years finally happened and glaucoma took much of her vision, it hit her hard. But her desire to keep living meant challenging herself—even when it scared her.
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Episode 65
Michael's vision loss led him down a long, uncomfortable road, discovering what he had to let go of and what he could still hold on to for his future. He continues to challenge himself to try new things.
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