Strength in Asking
Moving to New York City and becoming comfortable using a white cane helped Nisha see asking for help differently and opened the door to unexpected connections with others.
Hadley
Strength in Asking
Nisha: The white cane communicated to the world that I was visually impaired because I still have a lot of the habits of a sighted person. And without that white cane, people look at me and say she doesn't need any help.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Nisha: My name is Nisha Falcigno and I am someone who has been diagnosed with cone rod dystrophy. I was diagnosed with that about 30 years ago, and in the last 10 years it's definitely created a situation where I'm now legally blind and I use a cane and several other type tools to help me navigate living in New York City.
Unfortunately, I realized I couldn't drive anymore and I lived in suburban Connecticut, so that was a bit of an issue. I then decided that the best thing for me was to move to a more urban environment, one that I was already familiar with before my vision loss took effect. So I had a familiarity with the landscape. Once I moved to New York, there were so many more resources available to help me adjust to things.
And it's just a matter of, for instance, going into a grocery store and identifying yourself as visually impaired and asking for help in that store. And someone is kind enough to take me through the store and help me do things like shopping and all the other things you need to do when you can't really identify items on a shelf anymore.
First, I had to learn that I needed to use white cane and the white cane communicated to the world that I was visually impaired because I still have a lot of the habits of a sighted person. And without that white cane, people look at me and say she doesn't need any help. Why is she asking these questions? So, using the white cane was something I had to really get over some mental hurdles in using it because I then now communicated to the world, “okay, I have this visual impairment.”
And the beautiful thing about that is that I've had so many interactions with people who were basically strangers and it's given me that human connection that I might not have ever had had I not needed the help and asked for it. And it's given me a wonderful experience of meeting all these people that I never would've normally had the opportunity to meet.
And I realized at that point that asking for help and using the cane were really a source of courage and it wasn't a source of weakness. Once I figured that out, it changed my life.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 54
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
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Episode 46
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
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Episode 45
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.
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Episode 44
Judy has lived with progressive vision loss for many years. She's found a way that helps her cope and adjust.
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Episode 43
For years Bill hid his vision loss from others. He was self-conscious about it. Then, he decided to open up.
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