Pat shares with us the choices she made when faced with a visual impairment.
Hadley
I Chose to Educate Myself
Presented by Douglas Walker
Douglas: Hello, and welcome to the Insights and Sound Bites podcast, where people facing vision loss share insights about what has helped them cope and adjust.
Voice 1: You cannot do this alone. You need people who are experiencing the same thing.
Voice 2: Probably the hardest part was just navigating through the emotions of it.
Douglas: My name is Douglas Walker. A routine trip to the eye doctor can suddenly change your life. Today, we’ll hear from Pat. Pat will share with us the choices she made, when faced with a visual impairment
Pat: I was diagnosed with macular degeneration in 2014. What was thinking, I was going in to get a new kind of contact lens, so would help with my computer work and came out being told not only is your vision poor, but it's not going to get any better. My father had macular degeneration before there was any treatment and of course, eventually went completely blind. I had lots of opportunities in my hands, thank heaven. As anxiety ridden as being told you're going to lose your vision, you have a couple of choices, you can either sink into it and be miserable, feel sorry for yourself, and wallow in self-pity, and I'm an educator by education and by trade, and so my idea is find out how you can do better.
My thought was even though my vision wasn't that bad at the beginning, my weapon of choice was to educate myself, find out while I had relatively good vision, how to do things, how to adapt, how to make my home adaptable to my needs. So that was my theory for survival and optimism is education
Douglas: Was there something that someone said to you or something that happened along the way that made all the difference in the world in helping you adjust to living with vision loss?
We’d love to hear from you. If you’d like to share us, just leave us a message on our Insights and Soundbites podcast voicemail by calling 847-512-4867. Or you can use your smartphone or computer and email us a recording to [email protected]. Again, my name is Douglas Walker, take care and see you next time.
Marie grieved the loss of her vision, and still does. Yet, on a sunny August morning, she came to a realization that made all the difference in the world.
Terry's doctor told him, "There's nothing more we can do. You'll never drive again," and he was distraught. Then he recalled his military days as a Marine and sailor, and that got him through.
When Emma lost her sight in just a few months, she struggled to cope. She felt alone, her insecurities grew, and self-esteem plummeted. With time, she came to a new understanding and that helped her tremendously.
Dave calls his experience with vision loss a slow torture. In the face of this, however, he has found a sense of inspiration in explorers, history, and an activity you wouldn't typically connect with vision loss, sightseeing.
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.