"I never thought of that"
Randy's search for help led him into a whole new way of thinking.
Insights and Soundbites
I Never Thought of That
Presented by Douglas Walker
Douglas: Hello, and welcome to the Insights and Sound Bites podcast, where people facing vision loss share insights about what has helped them cope and adjust.
Voice 1: You cannot do this alone. You need people who are experiencing the same thing.
Voice 2: Probably the hardest part was just navigating through the emotions of it.
Douglas Walker: Hello, and welcome to the Insights and Sound Bites podcast. My name is Douglas Walker. Sometimes it just takes that one spark to light up a whole new path. Today we’ll hear from Randy. Randy will share with us how his search for help led him to a whole new way of thinking.
Randy: There's always the, why me thing. And then of course, you go back to the, why not? I have a strong faith, and I understand the way life works, but there's still emotionally, as humans, we still deal with the sense of loss and, "Well, what do I do now?" A lot of it is, "Well, okay, I got this." And even if you are able to come to terms with it, it's like, "Okay, so now what?"
One of the things that... Looking backwards, probably the hardest part was just not understanding and getting information and help on trying to navigate through the emotions of it and navigating with the loss of vision. And there wasn't a lot of help.
But, when I came across that one by Douglas Walker, Adjusting to Vision Loss, and I read it, it just captured so much of what I felt over the years. To me, it was the most logical first workshop anybody should take when they encounter vision loss, when they're first dealing with it. It just helps you to think about the emotions, think about, "Okay, what are my steps going forward, and what am I going to do?"
What I liked about that was they made a comment about how vision loss is... When you have a loss, you go through the cycle of grieving, anger, all that stuff. Yeah, we all do that. But what was very interesting is they made the comment, "Well, because people don't realize your vision, you reach a plateau and then a little while later, your vision deteriorates more, you go through the whole process all over again." I never thought of that. That makes perfect sense.
Douglas Walker: Was there something that someone said to you, or something someone did for you early on that made all the difference in the world in helping you adjust living with vision loss?
We’d love to hear from you. If you’d like to share with us, just leave us a message on our “Insights and Soundbites” podcast voicemail by calling 847-512-4867. Or you can use your smartphone or computer and email us a recording to [email protected]. Again, my name is Douglas Walker, take care and I’ll see you next time.
All Episodes
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Episode 58
Marie grieved the loss of her vision, and still does. Yet, on a sunny August morning, she came to a realization that made all the difference in the world.
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Episode 57
Terry's doctor told him, "There's nothing more we can do. You'll never drive again," and he was distraught. Then he recalled his military days as a Marine and sailor, and that got him through.
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Episode 56
When Emma lost her sight in just a few months, she struggled to cope. She felt alone, her insecurities grew, and self-esteem plummeted. With time, she came to a new understanding and that helped her tremendously.
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Episode 55
Dave calls his experience with vision loss a slow torture. In the face of this, however, he has found a sense of inspiration in explorers, history, and an activity you wouldn't typically connect with vision loss, sightseeing.
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Episode 54
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.