"I never thought of that"
Randy's search for help led him into a whole new way of thinking.
Insights and Soundbites
I never thought of that
Randy: Probably the hardest part was just not understanding and getting information and help on trying to navigate through the emotions of it.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Randy: There's always the, why me thing. And then of course, you go back to the, why not? I have a strong faith, and I understand the way life works, but there's still emotionally, as humans, we still deal with the sense of loss and, "Well, what do I do now?" A lot of it is, "Well, okay, I got this." And even if you are able to come to terms with it, it's like, "Okay, so now what?"
One of the things that... Looking backwards, probably the hardest part was just not understanding and getting information and help on trying to navigate through the emotions of it and navigating with the loss of vision. And there wasn't a lot of help.
But, when I came across that one by Douglas Walker, Adjusting to Vision Loss, and I read it, it just captured so much of what I felt over the years. To me, it was the most logical first workshop anybody should take when they encounter vision loss, when they're first dealing with it. It just helps you to think about the emotions, think about, "Okay, what are my steps going forward, and what am I going to do?"
What I liked about that was they made a comment about how vision loss is... When you have a loss, you go through the cycle of grieving, anger, all that stuff. Yeah, we all do that. But what was very interesting is they made the comment, "Well, because people don't realize your vision, you reach a plateau and then a little while later, your vision deteriorates more, you go through the whole process all over again." I never thought of that. That makes perfect sense.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 60
Diabetic retinopathy has taken more and more of Charles' vision. To cope, he is learning new approaches to life AND leaning into areas of passion that don't rely on sight.
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Episode 59
Bruce's vision had been decreasing for years. When it reached the point where he was tripping over objects and bumping into people, he felt embarrassed and kept his vision loss a secret. His wife convinced him to try something new.
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Episode 58
Marie grieved the loss of her vision, and still does. Yet, on a sunny August morning, she came to a realization that made all the difference in the world.
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Episode 57
Terry's doctor told him, "There's nothing more we can do. You'll never drive again," and he was distraught. Then he recalled his military days as a Marine and sailor, and that got him through.
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Episode 56
When Emma lost her sight in just a few months, she struggled to cope. She felt alone, her insecurities grew, and self-esteem plummeted. With time, she came to a new understanding and that helped her tremendously.
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Episode 55
Dave calls his experience with vision loss a slow torture. In the face of this, however, he has found a sense of inspiration in explorers, history, and an activity you wouldn't typically connect with vision loss, sightseeing.
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Episode 54
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"