"It's not just happening to me"
As Patricia's vision changed, doing things on her own became harder, and at times she felt like no one really understood. Connecting with others going through many of the same things helped her feel less alone and more like herself again.
Hadley
“It’s not just happening to me”
Patricia: I couldn't recognize people's faces. That had always been a problem. Sometimes it feels like I'm the only one. I'm in this world all by myself.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Patricia: I'm Patricia Gunter. I'm in Valencia, California. I have retinitis pigmentosa, newly diagnosed with cataracts. They've gotten very thick and out of control, so I'm looking at cataract surgery.
I was told as a child growing up, from 12 on up, that I was nearsighted. That's all I ever knew. I didn't know anything about being legally blind until I became an adult. And so here now I'm looking at cataract surgery and hoping for the best.
I couldn't recognize people's faces. That had always been a problem. Even my children, my responses, just their voices is what I would listen for, but I didn't know I couldn't see. Recently, I made a move back in November, and before I moved, I noticed someone knocked on my door, I opened the door, and I didn't see anyone. And I didn't think I had lost my vision at that time, but I think it was happening then. And just even now, I just have issues even visually seeing things in front of me.
It's really scary. And it's like I'm in a tunnel. I feel like I'm closed in like claustrophobic and I'm afraid to be alone in public, to travel, because I was independently traveling on buses and dollar ride, things like that.
Sometimes it feels like I'm the only one. I'm in this world all by myself.
I think by calling Hadley being in a group with other people that are dealing with the same issues with the vision loss, just being around other people with like conditions helped me to get through my situation because hearing other people's stories, I know, "Oh, I'm not the only one." It's not just happening to me.
And know that I'm still a person in spite of my blindness and that I still have a life to live and just hearing other people's stories and how they're adjusting to the blindness and it's like, "Okay, come on now, it's okay. You still alive, you still can meet people that I can smile, I can sing, I can dance, I can do ... " Those things, I don't have to feel sad and alone anymore. I just feel very glad that I found out about the groups.
Just knowing that people care about you in spite of your blindness, that you're still a person, I heard that in the group and they have people that I talk to on the phone and they make me feel like I'm a person, that they need me, like I need them.
It just helped me.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
All Episodes
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Episode 27
Listen in as Cindy shares how advice from her son helped her adjust to her new normal.
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Episode 26
Listen in as Tim recalls a conversation with a store clerk and how it helped him adjust to life with vision loss.
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Episode 25
Listen in as Alice shares a boyfriend's advice from many years ago. Words that give her hope, even today.
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Episode 24
Listen in as Bill shares how a chance encounter changed his perspective on vision loss.
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Episode 23
Listen in as Ruth shares how her frustration and impatience turned around with just one phone call.
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Episode 22
Listen in as Sam shares how he struggled trying to hide his vision loss-and how he finally turned the corner.
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Episode 21
Listen in as Eugenia describes how her own determination and the support of friends helped her keep moving forward.
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Episode 20
Listen in as Zenobia shares how she found the support and strength she needed.
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Episode 19
Listen in and be inspired as Saras explains how changing her perspective to, "Why NOT me?" helped her tap into her strengths.
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Episode 18
Sheri shares with us how the love for her horses helped her find purpose and peace.
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Episode 17
Kendra shares with us how a visit to a low vision center gave her more than she ever expected.
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Episode 16
Listen to Carol's story as she shares how owning her changing vision gave her the drive to discover useful resources and realize that it's important—and okay—to ask for help when she needs it.
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