For Cynthia, every story shared helps her on her own journey with vision loss.
Hadley
These stories help tremendously
Presented by Douglas Walker
Douglas: Hello, and welcome to the Insights and Sound Bites podcast, where people facing vision loss share insights about what has helped them cope and adjust.
Cynthia: I have been losing my sight and it gets a little bit worse. But these stories have helped me tremendously.
My name is Cynthia Ceeyu and I live in Phoenix, Arizona, and losing my eyesight has been something that has traveled with me since day one when I was born. And it's my mother had called toxoplasmosis. And then as I got older and I'm 81, the macular degeneration set in, and so I have been losing my sight gradually and it gets a little bit worse all the time.
But my main focus today is I want everyone to know that has called in and left their story, that these stories have helped me tremendously. And I thank Hadley, for having the program and someone has been emailing me these good podcasts and they have helped tremendously to hear each story. There's something that I can pick up, whether it be how to get to a meeting or whether it be how to relate to some of your friends that it's a little bit more hard to be as close to them maybe as you used to be.
But my main focus today is so important to me that Hadley know how much these help people. Thank you.
Douglas: Was there something that someone said to you or something that happened along the way that made all the difference in world in helping you adjust to living with vision loss? We’d love to hear from you. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
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When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.
Dennis found that many aspects of life with vision loss can be a struggle. Then he found something that turned that around.
Judy has lived with progressive vision loss for many years. She's found a way that helps her cope and adjust.
For years Bill hid his vision loss from others. He was self-conscious about it. Then, he decided to open up.
Living with low vision meant Karen was constantly explaining to others what she can and can't see. Then she found a tool that has made a big difference.
Having to give up the car keys was traumatic for Eugenia. She worried about becoming isolated until she found a new way.
This week, hear how rediscovering a favorite activity helped Celia find balance as she adjusts to vision loss.
Denise can struggle with the slow but continuous loss of vision she's facing. But she's found a way to pick herself up on a bad day.
Listen in as Vanessa shares what has helped keep her from feeling hopeless and defeated due to vision loss.
Stacy shares with us how being honest about her vision loss with her friends and coworkers has made all the difference in the world.
For many, having to give up the car keys due to vision loss is traumatic. Deb felt it too. Then, during a call to arrange transportation for herself, a new door opened.
Listen in as Anne describes how a question posed to her shifted her perspective for living with vision loss.
This week, William shares how learning to continue with his favorite hobby, even with vision loss, has been therapeutic—and uplifting. Here's the link to his website https://www.blindtruths.org/
This week Angela shares how she struggled to get around due to vision loss, how she tried to hide it from others, and what helped her.
This week we hear from Appreciate. She found that a Facebook group, The International Blind Cafe, gave her a source of comfort and encouragement.
Marian's inner voice had her living in fear. Listen in as she shares how she redirected that voice to be more helpful for her.
This week Dorrie shares how technology has made all the difference for her in living with vision loss.
Today we hear from Ed who shares how the source of hope for him has changed with time.
Listen in as Cindy shares how advice from her son helped her adjust to her new normal.
Listen in as Tim recalls a conversation with a store clerk and how it helped him adjust to life with vision loss.
Listen in as Alice shares a boyfriend's advice from many years ago. Words that give her hope, even today.
Listen in as Bill shares how a chance encounter changed his perspective on vision loss.
Listen in as Ruth shares how her frustration and impatience turned around with just one phone call.
Listen in as Sam shares how he struggled trying to hide his vision loss-and how he finally turned the corner.
Listen in as Eugenia describes how her own determination and the support of friends helped her keep moving forward.
Listen in as Zenobia shares how she found the support and strength she needed.
Listen in and be inspired as Saras explains how changing her perspective to, "Why NOT me?" helped her tap into her strengths.
Sheri shares with us how the love for her horses helped her find purpose and peace.
Kendra shares with us how a visit to a low vision center gave her more than she ever expected.
Listen to Carol's story as she shares how owning her changing vision gave her the drive to discover useful resources and realize that it's important—and okay—to ask for help when she needs it.
Listen in as Kara shares how she found new ways to express herself in her love of visual art, and redefining a meaningful life.
Listen in as Leah shares how it finally clicked for her—the realization that she's not alone.
Hear how Axel set one goal at a time and slowly took the steps to rebuild his skills, reengage in his art, and reestablish his emotional well being.
Gregory shares how finding a mentor made all the difference in the world to him, and his entire family.
Listen in as we hear from Sarah. For her, hearing a blind architect's story changed her perspective on what was possible.
Listen in as Tom shares how leaning on his faith helps him adjust to vision loss.
Pat shares with us the choices she made when faced with a visual impairment.
Darryl shares with us how a referral to a low vision specialist was where his life with vision loss began to turn around.
Annie shares with us the steps she took to work through her depression by seeking help from a mental health professional.
Sharon shares with us how she worked through the isolation and found people just like her to get the support she needed.
Hannah shares with us how she had to give herself permission to grieve her vision loss in order to reach acceptance.
Randy's search for help led him into a whole new way of thinking.
Ruth shares how her mother's advice, "Knock the T Off Can't," helped her.
Larry shares how he found strength in his core beliefs to get him through the shock of his initial diagnosis.