"Things turned around for me"
Darryl shares with us how a referral to a low vision specialist was where his life with vision loss began to turn around.
Hadley
Things Turned Around for Me
Presented by Douglas Walker
Douglas: Hello, and welcome to the Insights and Sound Bites podcast, where people facing vision loss share insights about what has helped them cope and adjust.
Voice 1: You cannot do this alone. You need people who are experiencing the same thing.
Voice 2: Probably the hardest part was just navigating through the emotions of it.
Douglas: My name is Douglas Walker. It’s really hard to hear that nothing can be done to correct your vision. Today we’ll hear from Darryl. Darryl will share with us how a referral to a low vision specialist was where his life with vision loss began to turn around.
Darryl: My name’s Darryl Pratt and I live in Arlington Heights, Illinois. In my case I'm legally blind, but that doesn't mean I'm totally blind. The way I put it is I can see, but I just don't see very good. I can't see things at a distance. I can't see things close up to write.
The doctors weren't particularly encouraging about the dry macular degeneration. They weren't encouraging that there was any solution to that and they'd say, "Well, I don't think there will be a cure in your lifetime," which didn't really get you really excited and want to be what you wanted to hear.
It's sort of at that point where I decided, and then I was lucky I got referred to a low vision specialist, and that's where I think things turned around for me, that I kind of felt like, "Okay, now this is going to help me," because what I'm looking for, is I'm looking for things and ways that can help me see better with the vision I have, and that's sort of my goal.
Douglas: Was there something that someone said to you or something that happened along the way that made all the difference in the world in helping you adjust to living with vision loss?
We’d love to hear from you. If you’d like to share us, just leave us a message on our Insights and Soundbites podcast voicemail by calling 847-512-4867. Or you can use your smartphone or computer and email us a recording to [email protected]. Again, my name is Douglas Walker, take care and see you next time.
All Episodes
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Episode 57
Terry's doctor told him, "There's nothing more we can do. You'll never drive again," and he was distraught. Then he recalled his military days as a Marine and sailor, and that got him through.
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Episode 56
When Emma lost her sight in just a few months, she struggled to cope. She felt alone, her insecurities grew, and self-esteem plummeted. With time, she came to a new understanding and that helped her tremendously.
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Episode 55
Dave calls his experience with vision loss a slow torture. In the face of this, however, he has found a sense of inspiration in explorers, history, and an activity you wouldn't typically connect with vision loss, sightseeing.
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Episode 54
When Albert's vision decreased to the point that he could no longer read print anymore, he found it stressful. But he's found a new source of comfort that helps him quite a bit.
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Episode 53
Jayne can feel isolated living with her eye disease, spending much of her days forcing herself to focus on things that have become blurry. The stress can be overwhelming, causing her to shut down. But there's one area of life that now brings her more joy than ever before.
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Episode 52
When Jeffry lost his sight, he felt a loss of control, a loss of dignity. Then, he began his long road to empowerment, one small goal at a time.
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Episode 51
Marilyn went through bouts of anxiety and depression with her vision loss and still grieves the loss several years into her journey. She also decided to do something for herself which has helped tremendously.
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Episode 50
Learning to live with vision loss wasn't always easy for Pam. But with time, her bad days are fewer.
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Episode 49
Jennifer didn't know what to do or who to go to for help as her vision was fading. Then, by chance, she found some help. She found some direction.
The book referenced in this episode is "Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight"
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Episode 48
When Carmel heard a Hadley podcast, it helped her understand what had been happening to her along with her vision loss—something she had nicknamed her "phantom vision."
Carmel mentions an episode of our sister podcast, Hadley Presents. Here's a link to that episode on Vision Loss and Charles Bonnet Syndrome.
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Episode 47
It was tough for Linda to give up driving and she was heartbroken when reading became difficult. She felt her world was shrinking. But then she asked for help.
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Episode 46
Ashia felt all alone in her vision loss. No one around her knew what she was going through. Then she found something that gave her hope.