Sharon shares with us how she worked through the isolation and found people just like her to get the support she needed.
Insights and Sound Bites
You can’t do this alone
Sharon: One day I'll wake up and maybe I won't see as well. You know, every day was a different journey. It was a journey. Unless you’re with people who are experiencing the same thing, it's a very lonely thing.
Marc: This is Hadley’s Insights and Sound Bites, where people facing vision loss share what has helped them cope and adjust.
Sharon: When you first get that diagnosis and have no symptoms, you don't really understand what the possibilities are. I'm relying on a doctor to tell me the possibilities or to direct me in a direction of what could this journey look like. And I never found that.
There's a linear process and I most likely will lose more vision along the way. And one day I'll wake up and maybe I won't see as well. You know, every day was a different journey. It was a journey. It's terrifying. Unless you’re with people who are experiencing the same thing and can give support, it's a very lonely thing.
I'm adjusting it, but I'm much more stable now than I have been ever. I'm less fearful about the future. I know the vision may deteriorate further, but I feel I have the skills now and the support now with all of the services, yours included, to navigate.
The most important thing is you need a support group. You cannot do this alone. You may need more than your family. You need people who are experiencing the same thing.
Marc: You never know who might need to hear your story. If you’d like to share with us, just leave us a message on our Insights & Sound Bites voicemail. By calling, 847-512-4867. Or, you can use your smartphone or computer and email us a recording to [email protected].
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